Since my last post, I learned that I was stage IVa for MCL. I have finished my third round of chemo therapy and my updated pet scan confirms near remission. MY Oncologist’s plan is for me to continue with two additional treatments then repeat the pet scan to check on the activity level of the MCL. Each week of chemotherapy has been rough on me, family has been good support. I I understand there is no cure for MCL, so I wonder when they say they can place this MCL into remission, what that truly means. I’ll keep each of you updated on my progress.
Hi again and congratulations on your progress.
So from my point of view, with my T-Cell Lymphoma. 20+ years back when I was first diagnosed I was told that I would never be in remission let alone every hearing the word cure.
Fast forward to September 2016 I was told I was in Remission and NED (No Evident Disease)
My head consultant said that it could always come back but the further I go without relapse the more chance it may not come back and if I hit 10 years then I may be in the clear, but I live in the moment and take each day as it comes.
Hi Lee, living in hope is the only way forward.
I was discharged by my team with no follow up clinics. My Consultants parting words were “Mike, go live your life, live a healthy lifestyle, eat a balanced diet, keep some exercise going, keep your mind active, enjoy what you enjoy doing the most and let’s hope that you go on to die of natural causes”
That was 15 months ago and I am doing great and if it was not for coming onto this Community the memories would be getting fuzzy at the edges.
The one thing I learned over my 20 years walk with NHL was that Haematologists have lots of tools in the treatment box.
All the best.
