Ritux

Hi Ruth, wow your last post was 3 years back. I can't help you as my treatment journey was totally different but let's look for some other to come along.

Hi Ruth, the is some research from a couple of years ago looking at maintenance treatment and the length of it and was the any benefit, however it was looking at FNHL mainly and whilst patients felt the was a benefit, the stats said not when looking at the bigger picture. 

Best place to look is the New England medical journal and blood journal and the ASH conference papers. 

Has the consultant explained why the believe staying on treatment is necessary?

John 

I'm in the middle of maintenance Rituximab (MR) after the Nordic and stem cell transplant. MR is not standard treatment for MCL here in Australia yet (not covered by the free government 'NHS'). After I showed my haematologist results of a trial from Lyon about MR every 2 months for 3 years he managed to put me on it, but every 3 months for 2 years. He said Rituximab is a balancing act - too much can affect your brain.

As it is I've become neutropenic because of it and had to skip one dose. Strange as all through chemo I had very few problems.

Unless there's been some new research over the last year or so suggesting more MR is better, or there's something about your case that the doctor thinks warrants it, I don't see why you would have it.

Hello Pebblel26,

I see your post was in September 2018, what was your decision on the third year?

Yours

Millie