Enrich Trial

Hi  and welcome to the Online Community but always sorry to see you find us.

I have limited internet so can't do a search on the Macmillan site atm and I have to say it's a new one on me but let's see if some of the others will come along and help out.

Highlander ((hugs))

Hi Kathy re the closed group the are a few who have posted and if they are still visiting the site they may see this and ask if your sister in law or you wants to join. I am not a member as I had dlbc so cannot help.

The Enrich trial has 2 arms one receives Ibrutinib and Rituximab and the other more traditional chemo with rituximab included, like RCHOP, does she know which are she is in? and have they told her if her MC is one of the aggressive types rather than being slow growing. 

http://www.isrctn.com/ISRCTN11038174?q=&filters=conditionCategory:Cancer,trialStatus:Ongoing&sort=&offset=6&totalResults=293&page=1&pageSize=10&searchType=basic-search

the is also a link on that page to the cancer research site and a simple explanation of the trial this is the page

https://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-study-looking-at-ibrutinib-for-older-people-with-mantle-cell-lymphoma-enrich

I have not seen any of our members post about this so will be surprised if you find someone to share their experience, most opt for the nordic protocol which has been shown to have better outcomes than the previous protocol of rchop. Did they explain the trial to her and the pro's and con's? 

If you let us know which treatment she receives we can offer more specific advice, I had 8 cycles of rchop 9 years ago for my lymphoma.

John  

Thank you Highlander and Johnr for your kind replies. My SIL has just started on the Ibrutinib Arm of the Enrich Trial, they do not think she has the aggressive type, fortunately. For anyone interested I found a short video clip from Simon Rule of Plymouth University giving a succinct explanation of The Enrich Trial. It is just over 2 minutes long so worth Googling.   

Hi kathy

 I am a member of the Facebook site but if I am honest you better getting your information from the highlander and john r and the other members on this site.

 I found its mostly American based, I don't really use it at all.

julie

Thank you for your sound advice Julie, I will pass this on to my Sister in Law who has now joined this forum.

Kathy 

Hi Kathy, tell us your Sister in Laws forum name and we will keep an eye open for her xx

Hi Highlander, it is Cliffkid. She did actually join and posted last Tuesday (the 10th) but can't see it. I am wondering if she has posted to the general MacMillan Site by mistake. She'll get there!

Kathy 

Hi, tell her to introduce herself and we can say hi, now I know which arm she is on, I can say thats good as my belief is chop is old fashioned chemo for MCL and not as effective as others which is backed up by research. Also if her MCL is not aggressive thats a good sign to, so treatment may give her a long remission.

Hi folks, my Sister in Law is still having trouble posting. Her email address, name and Forum Name are all accepted but when she posts nothing happens. I have contacted the Moderator but I wonder if anyone could advise how she can obtain guidance. I tried starting a new discussion so that I could tell her the exact procedure but only succeeded in rejoining the forum! It is more important that she is able to communicate than I do on her behalf. We are both stumped. With thanks (in anticipation), Kathy 

Hi Kathy, there are a few issues with the site since its upgrade a few weeks back.

Did you use this email address to contact the site admins - community@macmillan.org.uk if you didn't then send the information using this address.