I just found out last Thursday that l have secondary cancer in my lymph nodes. My doctor ordered a pet scan this week and we can start from there. Am still in shock and crying all the time .l Am still in shock need to hear positive stories l have a son who is 7 and needs me.
Hi 2021. So sorry you have found this out. There are various support groups you can join and I see you have posted here but it's useful to know what the cancer is. It's easier to offer help if you can tell us.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Ah so you don’t know where from yet?
There is a section here that might pertain but until you know it’s difficult to steer you in the right direction.
community.macmillan.org.uk/.../head-neck-cancer-forum
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Hello , I don’t know if you’ve read this recent post by DaisyRed, https://community.macmillan.org.uk/cancer_types/lymph-nodes-secondary-cancer-forum/f/new-here-say-hello/224406/hi-i-have-had-a-biopsy-in-a-lump-under-my-arm-and-was-told-it-is-secondary-cancer-i-have-had-a-pet-scan-and-am-waiting-for-a-mri-i-have-no-idea-where-the-primary-is-or-what-stage
You are both in the same waiting period, but with cancer in different lymph nodes waiting to hear which type of cancer and what treatment will follow.
I was trying to work out what you mean by your question, I was thinking that you wanted some stories of people who had secondary cancer in their lymph nodes which did not spread any further, or you hoped that they had made a mistake as you have no symptoms. As Beesuitsays as soon as it’s identified which cancer it is it will be good to go to that particular group, as each cancer has different treatment.
When I was first diagnoses with metastatic melanoma in my lymph nodes (2015) this was the first group I headed for as I had no primary that was found, they made the diagnosis from a biopsy, so I thought I might identify with this group the most but it was very quiet, as people will quickly move on to other groups. I have disease progression to my lymph nodes again, I had scan results yesterday and I have an appointment about treatment tomorrow.
I can understand that you are still in shock it’s always easier to deal with when you have a treatment plan, and you will get one, it just the waiting and uncertainty that is the hardest part of all this.
Do you know what is happening next for you?
Take care KT
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