Welcome to everyone who's joined the group recently ! and in away that includes me, I’ll explain what I mean by that later.
If you haven't posted yet and want to ask someone a question or just talk about what’s going on in your head just click on Start A Discussion, which you'll see near the top of the page, or reply to this post. I’m hoping soon everyone will feel comfortable to join in a discussion and support each other. As this group might have people affected by various different cancer, or my not know what their primary cancer is yet. The lymph nodes affected might be in various different places which might bring some differences to.
If you haven't yet completed your profile when you have a minute could you pop something about your journey so far into it as it really helps others when answering. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
When you reply to someone it can be useful if you know how to 'tag' them so that they get an email telling them they've had a reply. The following is a link to an easy step by step guide to tell you how to do this.
For those of us waiting for results remember to come back and tell everyone how you get on!
Me - I’m usually a community champion (there’s a link after my signature to say what that means) in the melanoma group, although this was one of the first groups I joined 4 years ago as I had no primary melanoma but my pelvic and abdominal lymph nodes were enlarged and biopsied and scanned to make a metastatic melanoma diagnosis. I’ve had a fine needle biopsy guided by a CT scan, a further one guided by an ultra sound and a single lymph node removed as it was resistant to the Pembrolizumab immunotherapy drug I’ve been on, previous to that I was inoperable as too many nodes were affected.
Today Tuesday I have a further lump In my groin, and I had a CT scan last Wednesday so I’m waiting for those results. To be honest when I joined this group 4 years ago I didn’t stay very long as I hadn’t had any surgery at that point, and the group was very quiet. Today well, I wouldn’t want anyone’s post to go unanswered so I’ve volunteered to keep an eye out in here and hope others will help with their experience and I can perhaps with my knowledge of the site direct people around to any info and support sections I’ve found useful or to direct people to any other groups that are more suitable.
So I just wanted to say hello, and air where I’m coming from and hope some brave souls might say hello back. That way when I get my results which might be tomorrow I will have some to talk to who might understand any waiting for results and waiting for the next step.
Best wishes
