Went to see the oncology doctor today.I have to have Vinorelbine and Cisplatin , has anyone had this treatment? Ellen
Sorry me again, but yes I had this combination. Cisplatin can be quite rough nausea wise vinolberine I found to be absolutely fine. I did react a bit more than most apparently, so I am hoping you will find it easier than me. For cycle 2 I was given the anti sickness by IV which helped a lot. For cycle 3 I was swopped to Carboplatin which was much easier for me. So rest assured they will adapt and adjust if need be.
Is there anything particular you wanted to know?
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Thankyou Gina , I should be starting my treatment in around 2 weeks will let you know how I get on. Ellen
Not sure if they have said yet, but you will need a good thermometer just to keep an eye on yourself in case you run any temperatures.
They will give you a 24/7 line to contact along with examples of when you may need to contact them.
I found my tastes changed during chemotherapy, I usually drink tea for Britain, but not sure if it was the chemotherapy or the English milk (I am used to good old Jersey milk) but I barely drunk a cup. Instead I drank tonnes of orange juice and seemed to want bananas! Maybe because they were small and easy on the stomach. Oh and BBQ Hula hoops!
I would get lots of handy snacks or easy to make things to hand. I found with the nausea the first 3/4 days of the cycle I didn't really want to eat, but if I did feel like eating, the notion would pass quite quickly. So having something that you can grab or make very quickly is handy. Partly as well because I slept an awful lot and I wasn't in my own home, so by the time I had gone to the shop to get what I wanted to eat and prepared it I would be falling asleep in my plate. But I had radiotherapy at the same time which would have contributed to the lathergy.
Best of luck with treatment, any questions please ask, I will do my best to answer them.
Hi Ellen, I also had this combination and the oncologist stopped the course at session 4. By then I had been admitted to hospital twice for a week, once with sepsis, once with neutropenia and with 6 days of the double dose I was in a wheelchair every time unable to walk across a room due to lack of breath.
Dont mean to scare you, so many people cope extremely well with it and it’s a very tried n tested regime. I heard more stories of folk sailing through it. Just my luck it didn’t suit me! I had no sickness though or diarrhoea, just bad constipation.
Also it was virtually impossible to get cannulas into me so ended up having a pic line which got blocked.....the whole experience was horrendous if I’m honest! Everything went wrong that could go wrong BUT I’ve had 2 clear scans since so it did it’s job and I’m truly grateful!
Lots of luck for when you start, like another post said keep checking your temperature I had sepsis without feeling ill at all x
Thanks Gina , that helps a lot to know what I mine expect Ellen
Thankyou for your reply sounds as though you had a bad time but so glad you've had clear scans . Will definitely keep checking my temperature. Ellen x
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