Brigatinib side affects

Hi RonD 

living with the side effects of cancer treatment is hard. I think it is the one thing that is not spoken about enough. Cancer treatment affects your body and it is never the same again. I have several side effects of my treatment and whenever I mention it to my oncologist I am told “well you are alive “. This of course is the most important thing, but living with low mobility and pain is very difficult. Your oncologist treats the cancer, but there is no after care at all, not for people who are living with long term cancer on treatment, or for people who are now cured but are left with the debilitating after effects. 

Something that I now live which you mentioned, is neuropathy. The GP tried to ply me with more drugs to help with this, but that just left me feeling tired and in a zombie state. I have late onset neuropathy from the radiation I had to my lung 12 years ago. I have constant pins and needles across the top of my back, which spreads to my right arm, up my neck and on the worst days into my scalp. I have occasional shooting pain like electric shock that starts in my back and shoots down my arm. I drop things when this happens, and it completely takes my breath away. The only thing that I have found which brings me any comfort, is a massage pad that I brought from Amazon. You put it behind you and lean back whilst the pads make be around and massage my back. It also heats up which also helps, but I can’t use that function during this current heat wave. Sorry I am not able to help with ideas for neuropathy in hands or feet, as I have not experienced that, but hopefully someone else can share their experience with you. 

I also have very dry and itchy skin from my hormone therapy. I use epaderm cream which I buy over the counter from the chemist. I apply mine to wet skin before drying myself, it does seem to help me. I tried so many different creams before and this is the only one that has really helped. 

I am sorry you are experiencing these side effects. I know how exhausting it a make you feel. Hope you get some relief soon. 

Thanks Chellesimo

those comments really helped me because I can find very few people if any that has The  some issues.

You are quite right about the oncologist I suppose their job is keeping the cancer under control and bugger the side effects.I too try Epaderm cream along with a number of over-the-counter creams and ointment but no success yet.

how long with a number of over-the-counter creams and ointments but no success yet.

It is very reassuring that I’m not the only one to have the same feelings. There is plenty out there on the Internet but I don’t have a lot of confidence in most of it.

There is plenty out there on the Internet but I don’t have a lot of confidence in most of it.

Ron