Dazed and Confused

I am so sorry you have had this diagnosis. 
My husband was diagnosed with lung cancer in 2024. 
He had a bad reaction to immunotherapy which is rare.

He like you was confused as to what he should do as he is my carer also. 
We worked together on getting through a very difficult year and all I can tell you is take each day as it comes I tried to stay positive and we have learnt just how much development in treatment has moved forward. 
I don’t think anyone here will not have been as worried as you are now. Wait until you have got your results of the scan and you will get so much help and support from oncology. 

My husband didn’t believe the results of his last pet scan until he saw it written down and I am pleased to tell you he now does not have to have a scan for 3 months. 
Please stay as positive as you can and talk to your wife as she will want to support you I am sure. We have found ways to get the help I need.,

My husband is playing golf again and not too badly. 
A day at a time and I will be thinking of you. 

Thank you so much, truly inspiring.

love and rest wishes to you both xx

Like a number of us on here, I've had liver and lung "C" and I'm now quite happy with myself. When you get the results you can decide on your treatment. It will be involving and you need to plan for it so stop thinking negative. Results, treatment and getting over it should be foremost in your mind. Keep in touch with the Macmillan people they are a great help. You are not on your own 

Thanks Jagman.  I don’t mean to be self indulgent, it only been 5 days but woah, what a five days!  I am hopeful of more positive times after the CT scan.  Love and thanks

Hi spcowen 

welcome to the group but I am so sorry you have had to join us here. You are currently at the worst stage of your diagnosis, with so many unknowns. Not knowing what the cancer is, what stage, what treatment will be offered, how will that affect you. It’s terrifying, and probably feels very surreal at the moment. I remember I kept feeling like this wasn’t happening to me, but this was someone else’s life and I was on the sidelines just watching. Wishful thinking maybe. There is such a long process to go through before you get to know what treatment you will be offered, but in the meantime please do not google your symptoms. Dr google is so outdated, there are so many more treatments available now. My cancer is a sarcoma, but I have been incurable but treatable for 12 years now ( I’ve just realised it’s nearly 13). I’m a community champ in the lung group along with my fellow champ excavator 

if you need any help navigating the site please do ask. If you click on our profile pictures it will take you to your our profile page where you can read our journeys so far. 

You are not alone, we all here know what you are going through. Ask as many questions as you need, or if you just need a space to off load then we are a listening ear. 

I am so sorry to hear about the results of your tests, and the findings that you suddenly have secondary cancer in your spine and have yet to know literally where it's come from. You describe the shock, and loss and panic so well.  I was diagnosed with lung cancer nearly 10 years ago and I remember the weeks immediately after they found a huge "mass" as the most shattering of my life.  I can honestly say that this time, the days while you're undergoing all the tests, but don't yet have the findings and especially before your doctors will have developed a treatment plan for you are the worst.  It's partly the not knowing.  But I think (I hope) you'll find that once your results are available to you and to your multidisciplinary team (and there will be one!) and once they have decided on the best care/medications/treatment for you, you'll suddenly feel some hope for the future, and as if you're a part of the team involved in your own recovery. It's humbling, but it's also empowering in a weird kind of way. In the couple of weeks where I was floundering around thinking I was going to be dead in 3 months I put my affairs in order and decided I couldn't control the outcome but I could control how I responded to this devastating situation.  I've had lots of treatment since then and here I am, almost 10 years later, still knowing that every day is a gift.  You will find strength from somewhere - I'd suggest don't sell anything or dispose of anything until you've received an indication of the way forward from your doctors.  But there will be a plan and it will give you hope, and today there are so many more drugs and treatments that you can have  - hang on til then.  Best wishes.  

Thank you so much for you kind words.  Very comforting.  There seems to be a common thread of hope which I wasn’t aware of yesterday so I’m glad I joined the forum.

you are amazing and I genuinely send you best wishes and love

regards

stuart

Hi, I’m sorry that you have had all this thrown at you, having any diagnosis is vile but please just take some time to yourself and stamp, shout,cry etc.

I was told in December I needed to have a lower left lung lobectomy I was shocked and terrified. The nurses were talking but I had switched off. 3 weeks later 7th January had op.

We are all here to help, support and share our own experiences please please reach out and keep talking. I wish you good luck in the next lot of testing

Thank you so much for your response.! I hope your treatment is going well and you are feeling better xx

So I had the CT test today. Lovely people who made me feel at ease.  Hopefully not too long for the results.  I have aches and pains in the back so I am more or less certain it’s lung.

Myself and my partner have been engaged for 37 years and so this has given us the push to get married!  How can such a happy event be so sad?!

I better stop or I’ll start myself off again!  Where did I put that bottle of morphine…