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Hi -- I've been diagnosed with Stage 4 Lung cancer - non small cell Adenocarcinoma in one lung, which has spread to the other lung and also the sacrum. After having repeat biopsies I'm at last booked in to see the oncologist in 3 weeks' time. On that day it will have been exactly 4 months since I first talked to the GP about it, and I'm very anxious about how long it's all taking - if anyone has similar experience of these time frames, I'd be grateful to hear how you dealt with it. I'm feeling more rattled every day. Actually that's not accurate - it's more like I'm up and down like a yoyo. Anyone has anything at all to say, even just hello, I'm all ears.

chellesimo 1 month ago

Hi GailSP53 welcome to the group but sorry to hear about your diagnosis. The time frame that you mention is quite normal, especially if you have had to have repeat tests.

The way you are feeling is quite normal. You are in a state of limbo at the moment, knowing you have cancer, but yet to find out your treatment. I often say that having cancer is a rollercoaster ride, you never know where it is going to take you. The good thing is there are so many treatments available now, and so many people are living much longer lives with lung cancer. Please take a look at my profile page to see my journey. Just click on my profile picture and it will take you to my page.

Good luck with the oncologist appointment, please let us know how you get on.

“Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou

Chelle

Sanguinesse 1 month ago

Hello

Sorry to hear of your diagnosis. I had a very long wait for my diagnosis after being referred from my GP for a chest X-ray. The cancer target from GP referral to beginning treatment is supposed to be 62 days or so, which apparently is very rarely met. It was 96 days from seeing my GP before treatment started, but in that time I had multiple investigations which does take time, the biopsies alone take about 14 days to be reported.

Now that you have your definitive diagnosis, your appointment with the Oncologist will be about discussing the best possible treatment for the type of cancer you have and its progression. Things do get easier when treatment starts as far as anxiety goes because you know that things are happening to help you through this.

Best wishes.

Ann

GailSP53 1 month ago in reply to chellesimo

Chelle, thank you so much for replying. I just read your profile and I'm astounded at your courage and so sorry for what you've gone through. I love Maya Angelou too. Thanks also for the reassurance about the timing issues. You've inspired me to write a fuller profile now, and after hesitating a long time (this is my second bout with cancer - the first was sort of manageable) I'm realising that this time it's going to call on something much deeper within me, so I'm grateful you and others are out there.

GailSP53 1 month ago in reply to Sanguinesse

Ann, thank you so much for your reply and info about timing, I really appreciate the information and the goodwill behind it. Very best wishes to you.

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