Bad luck after bad luck after bad luck... how to keep fighting?

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Hi, 

I'm Alex, 53yo father of 5, diagnosed with stage 4 lung cancer in August this year after coughing up blood from a chest infection. I have nodules in my bones, adrenal glands, neck, arms and hip. I started my chemo/Immunotherapy treatment early November but unfortunately last week I had a stroke and have a little loss of mobility, constant groggy vision and the world's most annoying constant hiccups!! As a consequence of the stroke, my cycle 3 and 4 treatments are being delayed until the new year.

All I want (for Christmas) is a) to be able to go for a walk and b) hold my partner at night. However, I can't walk more than 20 yards without exhaustion and my hiccups mean I can't sleep in the same bed as my partner.

I'm curious as to why my cancer has to strip me of all the things that make my life worthwhile. It's like it deliberately wants to end all aspects of it, deliberately cruel.

I also wonder why I feel a little let down by the senior doctors and consultants that are dictating my life, of course with good intentions, but achieving so little in terms of making my life comfortable and with any kind of hope. I definitely feel like a number. If they could just talk to me for more than 5 minutes, in plain English, any kind of hope at all..?

I've had a good cry writing this and now I'm done with feeling like the unluckiest man in the world. Been a bad day, its why I wanted to reach out.

To balance: I have 5 beautiful, healthy children whom I love without limits and know will lead happy and fulfilling lives when I'm gone. I have a beautiful partner who is struggling as much as I am, but who will still be young enough for a new life when im gone.

Maybe im at a stage where I am starting to wish the end comes sooner than not.

Any hope out there?

Big love, big Al

  • Hi  welcome to the group, but sorry you have had to join us here. I am really sorry to hear how much you are struggling right now. It must of been very hard when you suffered a stroke last week, and you will still be recovering from that. 

    You asked if there is any hope. Of course there is, hope is the one thing that cancer cannot take from us. The one thing I have learnt from having cancer, is how quickly things can change, sometimes for the worst, but they can change for the better just as quickly. 

    You just need to get your strength back, then get back on your treatment in the new year. Wishing you all the best. 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • Chelle,

    Thank you so much for the hope and inspiration on a bad day and exactly what i needed to hear..you are that rainbow Rainbow 

    Just had a hug from my youngest daughter which helped a lot too.

    Tomorrow will be better.

    Praying for sleep.

    Sweet dreams

    Speak again soon.

    Big love, big Al.

  • Hi there Big Al,

    I am new here too. Feeling sorry for myself today, and thought I’d join this forum as people here tend to ‘get it’ whereas the general population sometimes fails to understand.

    It does sound like the stroke was a setback for you, I am so sorry that things seem to be conspiring against you right now. Sometimes it really does seem too much to deal with.

    My cancer diagnosis was this summer, and I was ‘fortunate’ to be a candidate for surgery. They took out my entire right lower lobe, and after the op, life was a bit awful. I soldiered on, did the physio, and prayed that my life would go back to normal.

    3 months after surgery, my husband of 29 years said he wants a divorce. The bottom fell out of my world. I am ALK+ but not a candidate for targeted therapy where I live. First Christmas alone, I have decided to volunteer so as not to find myself totally on my own. Life is never what you think it is going to be.

    Do hug those lovely children, and know that your partner’s presence in your life is still a huge gift. Those hiccups will get sorted, I am sure; you will be back to sharing a bed in no time.

    Meanwhile, have faith that your oncology team is putting together a care package to fight this cancer. Just try to enjoy Xmas with your family.

    All the best.

  • Hi Britething

    Good on you for reaching out, the old adage that talking helps is certainly true, especially in our situation.

    OK, wow, what life gives with one hand, it takes away with the other. I'm so sorry to hear that, after such massive brave work to fight back after surgery, your life took another awful turn. I can't wrap my head around why someone would do such a thing, especially as the support ive had from my partner and kids has been the one thing that kept me moving forward.

    I pray that you will find some comfort and solace in your volunteering and I so hope there are other people in your life you can share the holidays with. 

    You're going to have bad days but I promise there will be some light in the darkness. I found if I can make someone laugh, it brightens my day.

    So my hiccups have gone now. After a week they disappeared overnight literally. 5 days ago. My face numbness has eased and I am grateful for the break in chemo over Xmas so I can enjoy some good food. I even walked 500 yards around a garden centre to take my 2 youngest to see Santa.

    Little things.

    So, feel sorry for yourself for a bit, have a good cry, then find some light. Call a friend, tell them something funny (dark humour works for me!), make something good to eat, watch a great movie, meditate until you fall asleep. Wake tomorrow and go help someone. Talk to someone new.

    Christmas is just another day. Life is every day.

    Reach out again soon and tell me you saw some light and hope. 

    I just did.

    We fight on..its all we can do.

    Warmest, Big Al. X

  • Big Al,

    Thank you for your kind words. I am so glad the dreaded hiccups have gone. You sound like a dynamic and positive person, and I am so glad you have the kids and your partner to make you smile.

    Be sure to make the most of all the good Christmas foods and enjoy the love and warmth of your folk. I’m off to watch a movie as you suggested. Thanks for being there …

  • Hi Alex,

    Just checking in with you to see how you are, and how your Crimble went. Did the kids jump all over you while opening pressies? Did the dreaded hiccups stay banished? Hoping that you are doing ok and facing 2026 with lots of New Year's resolutions (lol).

    All the best ...

  • Hiya Britething 

    Really good Christmas thanks for asking after me. The break from Chemo was appreciated and I managed a mostly pain-free holiday. Kids had several Christmases at grandparents and were very happy. Lots of TV movies, chocolate, games etc.

    Hiccups mostly gone, had a couple of days with sporadic ones but nothing like the first week after my stroke and probably more to do with excessive eating and drinking lol!

    Tomo we have a meeting at Worcester Royal with the oncologist to understand chemo/immuno next week (3 of 4). Will be less anxious once I know what's happening and how they are going to mitigate any possibility of further strokes during the next treatment cycles.

    Finally, I had a wonderful sunset walk (well, hobble) on our local hill on boxing day and proposed to my partner. She said yes thankfully, so we're planning our humanistic forest wedding for April Grinning

    So, how was your Christmas? Where did your light come from? Hope you had the good time you deserve Heartpulse 

    Warmest,

    Big Al.