Hey everyone still trying to work out how this group works, only got my ct results Wednesday but as much as they can't say by law i did ask in their opinion was it and the answer was yes, am still waiting for them to call with a pet scan date so they can take a biopsi. I've joined here because my head is going crazy really and I've never been though anything like this so have no understanding of what happens and I'm terrified. I'm 47 i have 2 daughters aged 19, 15 and a son who's 5 each other is all we have and what will happen to them father taking them isn't a option I've got no parents or other family except one aunt who lives hours away and my kids don't want to leave their home
Hi Mar78fbfe6a welcome to the group but I am so sorry you are going through this. It is extremely scary when you are told you may have cancer. I remember that day very clearly, although it was 16 years ago, it felt like a living nightmare at the time!
These early days are very difficult because you do need lots of tests before they can “officially” tell you if it is cancer, what cancer it is, what stage it is and finally what the treatment will be. Whilst you are waiting for the results of all these tests you do feel like you are left by yourself to get on with life, but that is very difficult and you feel in limbo. People often as how do you cope with the waiting, and in all honesty there isn’t a real answer to that. Speaking with us here does help, you can ask any questions and we will see if anyone has had an experience they can share. But also just writing your fears and worries and sharing with people who fully understand what you are going through does help.
You can also call the MacMillan support line 7 days a week from 8am until 8pm on 0808 808 00 00.
I can fully understand your worry about your children. My daughters were very young when I was first diagnosed in 2009 with a womb sarcoma, and when it came back 11 years ago in my lungs, I was initially told I had 6 months to live. All I could think about was my girls, as I was a single mum. Cancer treatment, especially lung cancer, has come so far in recent years, that many of us are living much longer lives with the disease. There may be a time when you will have to discuss what will happen with the children if anything was to happen to you, and I think that is a good thing for everyone to do because you never know in life what will happen. A very good friend of mine died very suddenly with no previous health concerns at the age of 50 and nobody knew what her wishes were. For the moment concentrate on getting through these tests. Once you have your full diagnoses and a plan is in place, you will feel more able to think about these things more clearly.
Thank u it's just so very scary with no family support although friends have been very supportive ️
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