Undiagnosed

Hi Sophie79 welcome to the forum and I am sorry that you have not had a response as yet. I feel sure one of the lovely  folks on here will be along soon to offer up some information. Meanwhile I wanted to wish you well for tomorrow with scans and biopsies we will be thinking of you..Best wishes Gail x

Thankyou. I am trying to be in business mode ie just get it over and done with tomorrow but I'm pretty nervous. Waiting for the results will be the hard part x

Hi Sophie79  welcome to the group, but sorry you find yourself here. I hope the pet scan and the needle aspiration went well today. I can imagine it has been a long day for you. 
The waiting for results is always torture, it seems to take so long. But hopefully you will get some answers soon, and I hope you will get some good news, and they can easily sort this pain you have been experiencing. 

Hi Sophie, you are in my thoughts and I send you love and light. Stay positive you are being held within this amazing forum. Wishing you good results. Xx

I’m so sorry that you are in this situation and really emphasise.  waiting for results , it is the worst  part , I went through something very similar a year ago. For me unfortunately it was cancer, mesothelioma,  but once I knew at least I could explore treatment options and try and move forward. Talk to your family and friends, keep busy what you are feeling is completely normal just a bit rubbish xxxx

Small update but not really any more information just yet. I know today should have been the MDT meeting and the hospital called this afternoon to book me an urgent gynaecology appointment! Very unexpected! I presume it's to do with the results of the PET scan. So now I have a new 2ww appointment on Friday morning and hope they can shed some light as to what's going on. I'm panicking a bit.

I was told in a phone call that my lungs did not light up on pet scan so they are happy to follow up xray and ultrasound in a few weeks, which is good news but I'm still symptomatic with chest pain after 4 months. The scan did point to a healing rib fracture as possible cause of lung trouble. This was never picked up before but is reassuring that I may heal eventually. 

However, what did light up was the right side of my uterus, hence the new referral. Going to see gynaecology in the morning and hopefully find out more. 

Hi Sophie

Just want to say from a breast and lung cancer patient, very best wishes for your gynaecology appointment .

Ann

Thankyou, I had a TV ultrasound and nothing obviously bad was found but there is a small area the consultant thinks is a benign adenomyoma. However because the PET scan lit up that area she did a uterine biopsy (painful!) and I have an MRI booked for 11th August as I am going away tomorrow for a week. If it all comes back fine then nothing further, but once again waiting for results

She additionally told me that I have no follicles in my right ovary and only 1 tiny one in my left. They are basically all tissue now. Strange as I've had PCOS for 20+ years and ultrasound a year ago still showed ovaries as enlarged and polycystic- now they are normal size and empty - I guess menopause has come for me as well! I'm only 45.