An update. My 80 year old husband was diagnosed in early May but, after the initial shock, Salisbury Hospital have organised gene biopsies in Manchester and in France/Spain and we now know he’s been “lucky”. Only 3-5%of cancers are ALK+ and he can hopefully benefit from Alectinib. One week into treatment no side effects so far. He has a baseline brain MRI tomorrow so we can’t fault NHS so far. I found a brilliant patients group/charity on Face Book and we’re meeting a few local fellow patients for a-sponsored- lunch in a couple of weeks. One of this group is 78 and diagnosed 7 years ago. I wanted to post this to say that diagnosis is not the end…..there is hope. Good luck everyone.
