An update. My 80 year old husband was diagnosed in early May but, after the initial shock, Salisbury Hospital have organised gene biopsies in Manchester and in France/Spain and we now know he’s been “lucky”. Only 3-5%of cancers are ALK+ and he can hopefully benefit from Alectinib. One week into treatment no side effects so far. He has a baseline brain MRI tomorrow so we can’t fault NHS so far. I found a brilliant patients group/charity on Face Book and we’re meeting a few local fellow patients for a-sponsored- lunch in a couple of weeks. One of this group is 78 and diagnosed 7 years ago. I wanted to post this to say that diagnosis is not the end…..there is hope. Good luck everyone.
Hi Jasmina80 thank you for sharing your update with us, it is great to see that your husband is doing so well on the treatment. I hope you have a lovely time at the meet up, it is good to meet people with such positive stories, as it is hearing them here too, so thank you.
