Diagnosed Wednesday with Lung Adenocarcinoma….

Hi Jilly,  we've all been there, you have to make your own decision following the advice of your consultants. I went for surgery both for bowel 03 then lung 04. IMHO get it out then it's gone. No after effects from Chemo' or Radio. I'm feeling fine now and more or less my normal self. I've had another scan and getting my result/consultation next Friday. It's a case of getting on with the procedure. It's bloody annoying but here we are. Like the rest of us, you are now in a club no one wants to be a member of. Stay positive and good luck.  

Hi JillyBT

So very sorry that you have cause to be on here.

Lung Cancer is no longer the automatic death sentence it once was, plus new treatments are now widespread and 'old' yet still effective treatments have been made a lot kinder (less side effects).

Your appointment is to discuss your treatment plan indicates that your cancer is treatable; which has to be viewed very much as a positive. 

I realise it can be scary going through all of this.  Once you know your treatment plan you will feel less scared. We have all been through this and many, many of us on here are living well with or have survived lung cancer.

When you get your treatment plan, comeback on here with the details for advice on how best to get through it.

Kegsy x

Hello,

Just thought I’d say hello and wish you good luck. Once your specialist gives you a treatment plan, I hope you’ll feel at least you know what’s in store. Once I had the plan I had to wait for surgery. This was about 6 weeks later. I was offered some chemo afterwards but I decided not to go with it then. I may need it in the future although I’m currently all clear. If you can take someone with you it can help. I was assigned a specialist nurse who I could contact to ask any questions. They were very helpful and supportive. Good luck for your treatment plan

Hi Jilly,

You've already been given some spot-on correct advice. I would add that oncologists are prone to being pessimistic and brutal in their first assessment of your prospects. Take no notice, the cancer nurse will be more realistic and kinder too. My first consultant meeting gave me a prognosis of a few months, but I'm still here 7 years later and cancer-free. Write down what they tell you in that meeting, it can be hard to remember it all clearly afterwards.

kind regards
Steve

Kegsy - Thank you very much I will come back once I know treatment plan thank you x

Hi, being in limbo is not very nice but your emotions will settle once a clearly structured treatment plan is in place. Try and stay calm, take everything in and, if possible, take someone with you. I wish you all the best.

Hi Jilly

I'm so very sorry to hear of your diagnoses. 
I’m only here really to offer you some support and echo what the others have said. Try not to panic (not easy I know) and trust that your oncologist and specialist nurses know how to help and will have a plan for you.

You will honestly feel so much better when you’ve had a proper chat with them. I too have adenocarcinoma, inoperable and incurable in my case as it had already spread to my spine and lymph nodes at diagnoses but I’m a month in on targeted therapy ( tablets and injections) as I have a specific gene that can be treated in this way, I’m feeling fine with hope for a few more years on this planet yet. 

I wish you luck with your appointment on Monday and know that we’re all here if you need to ask anything, we all have different experiences of this journey and someone will usually be able to answer any questions you might have.

sending lots of positive vibes and a big hug your way  

take care

Jools

Hi everyone 

I have now met the Oncologist and Senior Lung cancer nurse and discussed the treatment plan.

i will start with Chemotherapy and the following week have a scan to plot the radiotherapy treatment. I will then have radiotherapy every day Monday- Friday for 6 x weeks and also 3x more chemotherapy cycles during this time. I am waiting the start date. Has anyone had something similar able to give any tips / advice?

Thank you

Jilly

Hi Jilly

I had the same chemoradiation treatment at the back end of 2011 (for Small Cell Lung Cancer).

The first cycle of chemo is usually done 3 weeks ahead of the start of the chemo.  This is so the chemo has a chance to start shrinking so that the radiotherapy has a smaller target to 'zap'.  

The benefits of the treatment are cumulative; unfortunately so are the side effects.  You may not get side effects from the chemo; however most people do experience tiredness/fatigue form the radiotherapy.  Do not try to fight it;just rest up when you need to.. So sod the housework etc in favour of snoozing on the sofa.

I will not lie to you, it can  feel quite brutal.  However the important aspect is that  it is very much doable!.

Good luck with the treatment'  If you need more detail, just let me know

Kegsy x

Thank you x