New here hello .

Hello Sainsbury, I'm sorry to hear that you've had such a bad reaction to the chemo.  Your story sounds quite similar to mine - Stage IIB, surgery, which I sailed through, and then scheduled for 4 rounds of chemo.  I only managed 3 and lost all my hair (which they had said wouldn't happen) and I wound up in hospital with neutropenia and sepsis, so my oncologist stopped the last round.  I had to hope that I'd had enough.  Just over a year later a CT scan showed the cancer had recurred in two of my mediastinal nodes.  So now I was re-staged to IIIA and they said I couldn't have more surgery.  So I was booked for more chemo and 6 weeks radio-therapy.  This time I managed two rounds of chemo before ending up in hospital again with neutropenia, but the radiotherapy was fine (every week day for 6 weeks).  My oncologist stopped the chemo again, but now said I was a good candidate for immunotherapy.  So I had Durvalumab infusions every two weeks for a year and here I am, five years later and there has been no evidence of recurrence so they say I no longer need any more surveillance.  So a good outcome!  I feel extremely glad and grateful. I found immunotherapy to be very very easy - absolutely no similarity with chemo, except that my skin reacted (I had psoriasis which was moderately bad, but actually a small price to pay).  They will keep giving you blood tests to monitor that you're tolerating the drug well. I think immunotherapy saved my life!  I hope you find this encouraging and reassuring.  Let us know what you choose.  Good luck! 

Thank you so much for your reply ,it has really helped me I will hopefully go on the immunotherapy and. Pray it goes well I will keep you up to date after Thursday lots of love Sainsbury x

Sainsbury's, glad you feel a little easier about this option.  Maybe talk it over carefully with your doctors too - there are some adverse events (which actually seem to show the drug is working!) but they will take good care of you.  Would appreciate hearing about your progress. 

I will ce rtainly keep you updated thanks for your reply’s most appreciate lots of love xx

Hi Sainsbury. I have just started immunotherapy,  3 weeks now, so still very new to me. So far, have not too many side effects,  slight temperature changes, flu like symptoms one day, nothing much to speak of. I hope you will be lucky with your treatment. 

Thank you for your reply hope everything does well for you ,I will keep everyone up to date after I have seen my oncologist at the end of February x