Long wait for diagnosis

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Hello, My husband has recently been diagnosed with cancer in his right kidney. He also has some nodules in his chest which may be related. He had a CT needle biopsy of his lungs on Friday and has to wait until after the MDT this coming Thursday for the result. 

I'm posting because it has taken months to get to this point. He's had bad back pain for over 7 months since finishing treatment for prostate cancer and was prescribed physio as they thought it was muscular.

Then in November he developed a bad cough and was breathless. We went to A&E and he had a CT scan which flagged up possible cancer ( given his past history with recent prostate cancer and before that, throat cancer 10 years ago) or a chest infection. He was prescribed anti biotics and told to come back in 6 weeks for another CT scan. During those 6 weeks he was prescribed more anti biotics, had an echocardiogram and angiogram but his heart looked fine. When he finally went for his CT scan at 6 weeks there were still unexplained shadows and nodules on both lungs. He had another scan a few days later, this time of his pelvis/abdomen and this showed Kidney cancer.

On Friday just gone, he had a CT needle biopsy of his lungs and now has to wait another week for results.

He has a worrying, worsening cough and is now saying there's not enough air flow in the house and wants me to open windows. I'm so worried about the treatment plan taking so incredibly long. His cough now has a wheeze sound. Has anyone else experienced this incredibly long wait and does anyone have any advice on what to do re speeding things up especially now he's saying there's not enough air, I'm so worried. Would appreciate any advice

  • Hi  well done for finding us here from the secondary lung cancer group. I won’t answer you here as I have already done so on the secondary group, but wanted to welcome you here.  I am sure others will join me in welcoming you soon. 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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