Hello, new to the group

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It's been a bit of a whirlwind and I suppose most people in the beginning feel like they've been hit with a sledge hammer 

I originally went to the GPS as I thought like my mum I had angina as ive noticed I had a small burning feeling in my chest when going up hill,stairs etc. Referred to the cardio dept who then did a CT scan and noticed a lesion on the RLL. Fast forward 3 weeks later referral to respiratory and have had a echocardiogram, spirometry, further CT and CT/pet scan. The consultant then suggested a biopsy which I went for yesterday the radiologist said he was unable to do it as A the lump is too small B it's in a poor position to get a sample. The radiologist sat and had a discussion with me and seems to think it is a very small early cancer, no spread anywhere in the body and nothing showing on the pet scan,but I know it can show a false negative. He then said the MDT team will meet on Thursday and there will possibly be 3 options another attempted biopsy(which can't say I want to go through again as might be unsuccessful), a wait and see approach or treat the growth as cancer and have surgery to remove the growth but, then he said if the lump is benign then I've had surgery for nothing. 

I also gave ME/CFS so it an extra struggle.

The only reason I'm thinking myself it could be cancer as the position of the growth is perhaps sometimes pressing on my lung when I breath in and out and, I think is the cause of the burning feeling in the centre of my chest .

Any help, views, information would be so helpful. Thank you

  • Hello Jaz_123,

    This is a tough one.It's difficult to comment constructively without knowing what they will actually recommend.

    Do you know exactly where the offending lump is in your right lung? If surgery is suggested they can sometimes take a sample to biopsy whilst you're "on the table" and if positive proceed with removal straight away. Obviously if negative the'll leave all alone.

    If it is positive you appear to be very early stage and long term survival is entirely possible following surgery. My cancer was more advanced but I'm still here just over 10 years later with no recurrence.

    The only other thing I can say right now is that most lung cancers do not cause any physical symptoms until they are more advanced which is a problem for most. Mine was diagnosed only because I coughed up blood and I had no other sign.

    I suggest you come back when the MDT have met. In the meantime any specific questions just ask.

    Derek.

    Made in 1956. Tested to destruction.
  • Hi Jaz - sorry you are going through this. I also had a failed CT guided biopsy  due to position, and the nodules are too small for a PET to be any use. I have been advised to have the lung wedge to get the two which are at 8mm out and that is scheduled for a few weeks (been cancelled twice). I also worry about such an op for what might be ‘nothing’. however, i guess if it is cancer then getting the chance to treat it so early is a blessing - the oncologist says sometimes removal is the only treatment needed (not always of course), Good luck with what you decide - its a really difficult one and I haven’t rushed into it but i think for me its time to do it

  • Thank you for your reply, and good luck with your op...I will see what the MDT team say after the meeting. The growth on my lung is 5mm and seems to be in a good position to take out, so at the moment I'm learning towards that, as I don't want this hanging over me with maybes and could bes