Hey everyone!
I was diagnosed first time in December 2021 with inflammatory and triple negative breast cancer, two years after chemo, surgery and radiotherapy I got the NED. But the last scan showed something on my lung.
In December 2023 I got diagnosed with stage 4 primary lung cancer. That was my first surprise it wasn’t the breast cancer that spread it was another new cancer, bringing my total to three separate types of cancer.
The lung cancer had two tumours as well as lymph node and plura spread. So I was scheduled for chemo and immunotherapy straight away. Unfortunately I had an extreme reaction to immunotherapy and ended up in hospital for two weeks whilst my whole body had a rash which then peeled like sun burn. It was painful and I missed Christmas with my kids, I was devastated, I wasn’t sure how many Christmas’ I had left.
Anyway I’ve had chemo every three weeks since then, my last dose was reduced to 75% due to the side effects being too severe now. Last scan showed tumours had shrunk and plura/lymph nodes were normal. Great news!
But I’m still struggling, mentally, I’m going to die early and as blunt as I am I’m upset about knowing I’m not likely to meet my grandchildren, see my kids get married and the old age I won’t see. I’m tired of treatment every three weeks for nearly four years that will continue for the rest of my life. Any advice on how to keep going greatly appreciated xx
