hello everyone, I have recently been diagnosed with limited small cell Lung cancer T1c N1, and I have started treatment of 4 rounds of chemo and 33 sessions of radiotherapy.
This time last year I was just finished treatment for head and neck cancer and was given the all clear of cancer, how ever I was getting experience of a slight chest pain that wouldn't go away and on one of my regular checkup's I ask my consultant if I would be able to had a ct-scan just to check things, this was shortly follow-up up with a PET-SCAN.
so far I have had 2 rounds of chemo and 4 radiotherapy sessions. I'm seriously frighten about what is a head of me and I haven't got an understanding of the staging I've got which T1c N1,.
I am desperate to hold onto hope but some day are hard and today is on of them. thing have happened so fast I can't get my head around things ill be pleased of any advice or suggestions
many thank Claire age 58 just want to get to 88 ️
Hi Claire, 1 year ago, I also had 'no evidence of disease' from H&N cancer treatment. It has now metastisised to both of my lungs and I am treatable but not curable. I have currently delayed chemo while I try and get on a trial. It sounds as though yours is being treated as curable? There only seem to be a few of us that have followed the path from H&N to lungs. I really hope your treatment goes well. Best wishes. Steve (60).
Diagnosed Feb 2023 with base of tongue cancer, oropharyngeal squamous cell carcinoma (OPSCC), HPV positive, staging: T4aN2CM0
thanks Steve for the reply, its nice to know I'm not alone, my lung cancer is a primary cancer. but to much googling has almost blown my head away, they are already talk about prevention radiotherapy for my brain just incase it has traveled or it thinking of it, in my eye prevention is better than cure.
thank you again Claire good luck also please keep me updated
Hi Claire
So very sorry that you have cause to be o here.
I know that you have read one of my previous posts in another thread. so I don't need to provide details of my treatment etc.
Try not to worry too much regarding the staging as it means what you already know i.e limited in one lung with no spread. To be honest I do not now why they continue to provide this info in this format as it just seem to cause more worry and confusion on top of the shock of the diagnosis.
You are doing so well with two cycle of chemo already completed and your radiotherapy started. The chemo will have started to shrink the tumour, making it easier for the radiotherapy to target the cancer with less risk of hitting surrounding healthy tissue.
I won't lie to you, as the treatment continues you will have some not so good days. The trick is to not think too far ahead and take each day as it comes. On the bad days you will have to dig deep within yourself even when you may think that there is no more left. Trust me, dig deep and you will find levels of strength and resilience you never realised you had. On my bad days my pep talk to myself was always simply " Ok kiddo,you are going to have to dig deep to get through today". and it always worked..
It is 13 years since my initial SCLC diagnosis and 12.5 years since I completed my treatment, so although it may not seem like it at the moment, getting through the treatment is so very much doable and so very much worth all the bad days.
My advice is; don't sweat the small stuff but celebrate every little win no matter how small.
I hope this helps. Keep going and I wish you the best possible outcomes.
Kegsy x
Very sorry to hear you have to be with us,but stay as strong as you can be and fight it with every ounce you’ve got,I’m at the beginning off my journey as am waiting for results to come back next wek hopefully I’ve also got prostate cancer but caught early and am on HT for it at moment,sending ️
Hi Claire, so sorry to hear of your situation. I’m on a lung cancer journey too, I have those letters and numbers describing my situation and clueless to what they mean, tried on here but that much it fries your brain. The chemo and radiotherapy treatments you had will have been tailored to your symptoms, keep hold of the positive outcomes of your previous treatments that may make it easier for future, speak to your oncologist as much as possible to explain any upcoming treatments if needed. I wish you luck on your journey and hope you have many more good days than anything else.
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