Saying Hello!

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Hi, I have Stage 3 NSCLC in 2 lymph nodes. Urgent referral 22.5.  Confirmed diagnosis 27.6.

I was supposed to start Chemo and Immunotherapy this week but they delayed because they did not do B12 injection a week before. ( I did ask about it a week before and they said was OK a day before treatment!)

Also I am unwell now on 3rd lot of antibiotics and more steroids again.

I am frustrated that through all the delays I keep getting infections and worse.  It is scary.  I just want treatment to start!

  • Hi  

    Sorry to hear that you have been having issues, totally get about it being scary.

    My wife's cancer is different and when she was diagnosed initially the doctors went for watch and wait. We all hear the message about starting treatment as soon as possible but it is important to be well as otherwise the chemo can make things worse. With my wife she ended up with infections during treatment and had a couple of bonus stays in hospital for intravenous antibiotics. 

    Fingers crossed you get on top of the infection soon and that your treatment works well.

    <<hugs>>

    Steve

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  • Hi Tirra I know exactly how you feel but you have to remember you are being dealt with by  experts that have your best interests at heart. They will do the best thing for you when the time is right All the Best Regards minmax

  • Hi I think we all have felt scared when we are first  diagnosed it’s all new and the unknown. And as soon as the word cancer is mentioned we’re filled with dread and fear the worst. I was  first told I had a bacterial infection for 5 months after a scan revealed a lesion in my right lung. Was in antibiotics for 11 xeeks  with no improvement was told I didn’t have cancer. Then I was given a pet scan  followed by a biopsy. Then told I had lung cancer then referred to a surgeon. Who then said I’d be better off to have chemo and Immunotherapy  before surgery. Then I had to wait again to see an oncologist. Then was told what treatment I was to have . Appointment was made for first  cycle . But on the day this was cancelled because they were awaiting results of a mutation. Then I had the all clear and treatment started . During all this time in month 6 my treatment started.  But my cancer had gone from 11 mm to 5.5 cm and spread to several lymph nodes. I was so happy when treatment  started as it made me feel like they were doing something  but until this point I was in limbo and felt that nobody was helping me. This week I will be having my last chemo then surgery.  But untill my ct scan on the 15th of August I’m still filled with dread  as to has the chemotherapy and  the immunotherapy done what they were hoping for or has it spread to other organs . I think we just need to have more faith that the treatment does what it says on the tin if you get what I mean .  But when there are delays and  long waits it’s hard . You are not wrong to feel how your feeling .  Its understandable. Wish you all the best with your treatment  and hope all goes well for you . Take care  x

  • Hi Serendipity O so much of what you say rings true. It's like a form of mental  torture. I was saying its like going before the emperor at the collosseum and getting the thumb up or down scene. I can relate to the tumour size as mine was 8.5 CM and told I was cancer free then actually told it was cancerous.  , I have had a neck dissection also which is a big job. Good luck with the surgery and your scan . I know it's trying  but no one can stop time and there is no quick fix one just has to wait. All the best minmax    

  • Afternoon Tirra,I’m awaiting biopsy results but know I have lung Cancer as I’ve seen it on Screen at breathing appointment it’s in my left lung like snowflake’s and in my lymph nodes in collarbone as that’s where they took the biopsy from as couldn’t get it out my left lung due to oxygen level being low,so they want to know what type it is,I’ve been on HT since April as was diagnosed with prostate cancer in January but very low level so their leaving that the now to treat this the now,not been well for a couple off months with coughing wheezing and tired ,then after 4 lots off antibiotics they decided to sent me for X-rays ct scan then biopsy so hear this week as that will be 2 weeks

  • Hi Robert1I hope you get the results you want All the Best minmax