I am new to the group and Just been told the results of a pet scan a few days ago

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I had a cancer scare 8 months ago because I  was feeling tired all the time had an xray showed a spot on my lung got a repeat xray then told it was a reflection from one of my nipples and nothing to worry about. The tiredness still persisted and having an aortic aneurysm  and being 69 years old I put it down to the normal aging process. However at 62 I was diagnosed with the aortic aneurysm I gave up smoking and decided that I would be as fit as possible for my surgery for the aneurysm. I walked 5 miles a day since then. Four weeks ago I had a problem swallowing this happened three timed the third time my neck was paralysed and I nearly chocked to death. I went to see my doctor who ordered another xray. When the results came back he would not tell me what was on the xray he said it was not clear and I would need a ct scan which give more detail. Thect scan results came in and I was called to the surgery urgently. I was expecting to be told there was a blockage somewhere in my throat caused by the aneurysm. At the last aneurysm scan I  had been told that I  now was ready for surgery and would meet the surgeon in two weeks time. In the doctors office I was told that I had a 29mm nodule at the bottom of my right lung and with the density and spiculation there was a strong possibility it was cancer. I had extensive tests two weeks ago and on Tuesday I had a pet scan and seen the consultant immediately after it he told me that the radiographer had not produced his report but he had looked at the pet scan and his opinion was without doubt cancer. He said that I need a biopsy but he said he would be very, very surprised if the nodule was benign as it was extremely active. The good news if I could have any at this stage was that in his opinion it was in the very early stage one or possibly stage 2 the stage would be determined with the biopsy. The cancer was confined to the right lung and none of the lymph nodes had any sign of cancer. He the told me that in his opinion it was completely curable if the removed the bottom lobe of my right lung. All checks regarding my fitness for the operation  and breathing capacity were excellent. The biopsy would be carried out in tree weeks time and was told it would be broncoscopy and I would get the result one week after. If they did not get a valid sample as in up to 40% of cases I would under go the surgery and the biopsy would be taken when before they carry out the main vats surgery. If it wasn't cancer they would close me up again, if it was cancer they would remove the bottom part of my lung. The aortic aneurysm surgery has been put on hold for three months and I have met with the surgeon  who says that it will be open surgery for this as there are two separate aneurysms. At the moment I am in some type of a surreal world I feel fine no aches or pains I am now walking ten miles a day in preparation for the upcoming surgery. I am trying to stay positive but still in denial that there is anything wrong with me. Sorry for the long ramble but I just need some reassurance that this is survivable both from a physical and mental point of view. I am off to see my Doctor  for a 10.00 am appointment to see what his views are.

  • Hello Brian543,

    This is a very frightening and unsettling position to be in, but I can tell you that from what you say about the stage and position af the suspected tumour this is indeed very survivable from a physical and mental point of view.

    I was diagnosed with stage2A cancer in my right lung in 2014. Due to the position of the cancer my right lung was removed in open surgery, my operation date was 10th June 2014 so 10 years ago in a couple of weeks. I am still going strong.

    I wish you all the best for a similar outcome.

    Made in 1956. Tested to destruction.
  • Welcome to the group  but sorry you find yourself here. You are in a very scary time at the moment, where all you can do is trust your medical team to do their very best for you. I think that  has given you the best reply as he was in your position all those years ago. 

    I would be interested to hear how your doctors appointment went? 

    Chelle 

    Try to be a rainbow,in somebody else's cloud
    Maya Angelou

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  • Thank you very much for your kind reply. I have seen that you have went through a worse trauma than most and you have survived despite all the difficulties that were thrown at you. I have to keep positive and know that if I survive the ordeal of having part of the right lung removed by vats I then have to face in a very short period of time having a purpose made stint to replace part of the aorta. This operation can not be carried out by inserting the stint in an artery and manoeuvring it into position it will have to be carried out by open surgery and the attached risks of infection that you have not got by the other less invasive procedure. I am getting a head of myself and intend use my effort rather than worrying about something far off in the future and concentrate on what is going on at the present time. The worst I think is the waiting and wakening up in the middle of the night and overthinking, can I ask how you deal with that?

  • I had an appointment with the doctor GP that sent me for the initial x-ray. He discussed my aneurysm and then asked me was there anything else, he hadn't even bothered to read my file before the appointment. He then said oh! your the one that was complaining about difficulty swallowing and I sent you for an x-ray how did that turn out. I then told him what had happened he said to me but you had no symptoms of lung cancer and then talked about divine intervention. He then said I don't actually know why I sent you for an x-ray. Most of these doctors treat you like a piece of machinery rather than a human being. Lets say compassion was not his strongest suite.

  •   I am so sorry that you had that experience with your doctor, but cannot say I am surprised. You are right, the personal touch of our GP’s is long gone, it’s very sad. 

    Chelle 

    Try to be a rainbow,in somebody else's cloud
    Maya Angelou

    Community Champion badge
  • The surgeon that is carrying out the biopsy has managed to get me an early ct scan next Tuesday as someone has cancelled.  He needs this to work out how to do the guided broncoscopy for the biopsy.  This hopefully will shorten the time to the operation to remove the lower right lobe. I need rid of this cancer as soon as possible before it spreads. Thankfully the surgeon seems to be on the ball but makes me think, has the radiographer found something else. Again my negative thinking you always think the worst. How do you cope with this type of thinking?

  • Brian how you are feeling is very normal. This is unknown territory that you are in, we are not the experts, and we are putting our faith into the hands of people we don’t know. These worries will always be there, I am 15 years into this cancer journey, and I still have my negative thoughts with every new pain, every scan date, every doctors appointment. We are only human.

    It sounds like you have a very good surgeon, who is really looking out for your best interest. Surgery is the best option for a cure, and the fact that he has managed to get you in quicker is great news. If there were any other concerns they would have told you, I know it’s hard but try not to dwell on those thoughts. Change the negative thoughts to positive, this is good news! The cancer will soon be gone! 

    One thing I have learnt is that if today I feel like a negative Nora, and I am having a down day, then there is always tomorrow to feel more positive. No 2 days are the same, we can always write this day off and start again tomorrow. 

    Chelle 

    Try to be a rainbow,in somebody else's cloud
    Maya Angelou

    Community Champion badge
  • Brian,

    Waking in the middle of the night and overthinking is what we all do, I think it affects us in different ways and unfortunately there's no standard way to deal with it.

    I'm no different and all I can do is try to find a way to cope. You might get up and walk around, have a drink etc. until your mind stops racing and you feel like sleeping again. All problems are suddenly much worse in the middle of the night when it's dark and you only have your own thoughts in your head.

    My own mechanism has always been to listen to some of my favourite music, a podcast or live radio (some, such as LBC, broadcast 24 hours a day on current affairs / topical news items etc. if that's what you're interested in).

    Personally I stay in bed, in the dark, using my 'phone with headphones on so as not to wake my wife because, even after 10 years of supporting me through all of my problems, she still gets anxious if I get up in the middle of the night in case there's something unforeseen wrong with me - and then she wouldn't be able to get back to sleep herself!

    I do hope you can find your own way to cope, but rest assured things will certainly become much less intense with time. 

    All the best,

    Derek.

    Made in 1956. Tested to destruction.
  • I then told him what had happened he said to me but you had no symptoms of lung cancer and then talked about divine intervention. He then said I don't actually know why I sent you for an x-ray.

    This honestly infuriates me.  Most people don't have any symptoms of lung cancer in the early (and most treatable) stages - that's why it's often discovered incidentally.

    Patients being shocked that they have lung cancer when they have no symptoms is understandable, but doctors should know very well that lung cancer isn't usually symptomatic in its initial stages. "You had no symptoms" in respect of lung cancer is right up there with "you're too young" in respect of other cancers.