Unfortunately I’m new here please give me some hope

Hi Scareddaughter62  welcome to the group, but sorry to hear about your mum. There is lots of hope! Lots of us here are living with long term lung cancer, treatments are so much more advanced now, that the internet is very outdated. So the first thing you can do to help yourself, is stop googling. 

There are different types of lung cancer, and depending on which type your mum has will determine which treatment plan she will receive. Wait until you have spoken to the oncologist before you start worrying about treatments, they are the experts and they will know what is the best way to treat your mum. 

Good luck with the appointment, please let us know how she gets on. 

Sorry you have had to come here, though you will be made, to fill welcomed.

Please do not google,. yes it is scary and the most of it, is out of date.

There us always hope, i have nsclc, things have really changed, with treatments these days..

Wait till Monday, and see what the treatment plan is, we all get a plan, and we know which way, we are going.

Once you know this, others can help and advise, if they have had the same .treatment.

Chelle has said the rest of what i, was going to say.

Thank you so much for your reply it really gives me hope. Monday just seems an eternity away right now. The nights are long. I’m hoping with everything that it’s not as bad as I’m thinking. Xx

Thank u for replying ️ i will update on Monday I’m just praying it’s not as bad as I think xx

Hi there, I just wanted to reach out as I know exactly how you’re feeling. My mum was diagnosed in June 2023 (stage 3). To say my world fell apart is an understatement. I lost my dad in 2021 so my mum is all I have left. I found it helped once we had a treatment plan in place. Try not to Google too much. Each and everyone responds differently to treatment etc. I have days where I’m quite positive and hopeful about the situation, and then there are days where all I can think about are the negatives. I think the key is to try to live for the day & not to worry about what hasn’t happened yet (though this can be tough!). Like I said I think it’ll be a little easier once u have a treatment plan in place. X

My daughter-in-law went through the same shock as you back in early August 2023.  Her mum was diagnosed with small cell lung cancer, also inoperable, apparently it is rare for small cell lung cancer to be treated by surgery.  Her treatment was chemotherapy, then immunotherapy.  Although the clinical team did explain the treatment is "palliative", but palliative is a scary word, it suggests end of life, which it isn't.  My daughter-in-law's mum was given three months of chemotherapy and is now on immunotherapy.  The chemotherapy shrunk her cancer really well and she is in fine fettle, she did lose her hair, but other side effects were minimal.  She is also fine on her immunotherapy.  She has put weight back on, eating well and is basically leading a normal life. 

Like my daughter-in-law, you will get over the shock and begin to process what your mum has been diagnosed with.  It is now seven months since her mum's diagnosis and everything seems to be going well, she is living a full life, going away for weekends and generally enjoying life.

Good luck and best wishes to you and your mum, you will get a clearer picture of your mum's diagnosis and subsequent treatment on Monday when you see the specialists.  Please keep in touch.

Hi

Scareddaughter62

Way back in 2011 I was diagnosed with Limited SCLC (in one lung only),  I was given 2-3 months of  brutal but very doable chemo/radiotherapy treatment. I have not had any further treatment since.  

You do not say how old your Mum is or how her general health is, as this may have some bearing on the type of treatment she will be offered.

 In addition to level of treatments on offer at  The Christie, they also tend to be involved in most cancer trials, so ask tomorrow  if Mum would be suitable for any SCLC trials currently open for admissions.  

Please do not waste your money on homeopathic ' so called treatments'; if they worked they would be on prescription.

I too was referred to The Christie, and honestly, walking through the doors for the 1st time I felt an overwhelming sense of relief and hope.

I hope tomorrow goes well and I wish you and your Mum the best possible outcomes.

Kegsy x

Hi, I just wanted to update. My mum has stage 4 ES-SCLC with plueral effusion. They’ve give her 3 months without treatment or 9-12 months with treatment. She’s starting a 12 week course of carboplatin and etoposide with atezolizumab along side it on Monday. I just feel numb right now :( 

So sorry to hear you’ve not been given better news. It will take time for you to process I’m sure. I don’t have a lot of advice but wanted to acknowledge your msg and send out some love your way. Xx