Newbie small cell lung cancer

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Hi

My husband was diagnosed by phone out of the blue on 14th December of possible lung cancer, which after a biopsy was indeed small cell lung cancer, we kept it to ourselves over Christmas so we didn't spoil anyone else's, and only told close family as we needed to focus and process everything ourselves,  my husband already had emphysema and pulmonary fibrosis and went for his normal lung function tests in October, he'd been ill at the time and his breathing was quite bad, we didn't see his normal consultant, but the one we did see booked a routine scan for March 2024, I asked at the time if we should be worried enough to bring this forward as his health/ breathing we're bad, but was told no, leave it until March, however during the next few days I thought otherwise and made an appointment with our GP, who arranged a scan, the next contact was 14th December from his normal lung consultant who asked if anyone had contacted us, regarding the scan, he was surprised that no one had, and then gave us the news of  10cm mass on my husbands left lung, the rest is history,  im just so angry at the moment that time was wasted from our October appointment where this could potentially have been picked up and treatment started, we've been backwards and forwards to GP with chest pains etc and I actually said in October " no one is joining up the dots" sorry for the rant  I'm not in a good frame of mind today, it's all still a big nightmare,irs like we're in a parallel world, I wake up every morning wondering if I've dreamt it all, then realise nope  it's real, and it's horrendous!

  • omg im so sorry to hear this i hope you can get some answers and treatment soon , we was told my partner had pneumonia on 8th jan 20th told ot was lung cancer with a ?small cell , he had biopsy other day then yeaterday went to have fluid removed from around his right lung to be told  he had lymphoma we are baffled so i spoke to his cancer team today they need to do more biopsys they think he has bcell lymphoma everytjing is so upside down i pray for u and you husband x

  • Thank you for your kind thoughts, he's currently on his 2nd round of chemo treatment  but we know its the more aggressive of cancers, and treatment is palliative, with the goal of giving him more time, it will come back and is inoperable even if the cancer shrinks  it could come straight back,  it's just hard trying to be permanently positive for him when as hes just told me, cheer up, times short! I'm trying,  but obviously falling short today and let my mask slip...my thoughts and best wishes go to you and your partner too 

  • im about anytime u want to chat or gety atuff odd ur cheat its so hard to do pocker face when our insodea are screaming another dau troo get through stay strong plan rhings ro so keep a positive mind or tey i know its hard but it does help xx

  • You're right, thank you, here's to another positive day!! X

  • Good morning . I’m sorry to hear your struggle .  I’m a similar situation . My husband too has SCLC .  I also had issues as the brain metastasis was missed . It was noted September as a small bleed but then no follow up scan till December which showed it had spread . However he’s had radiotherapy which has helped . But I was also so angry that this wasn’t sorted earlier . They can do a preventative radiotherapy so why didn’t they ! my husband isn’t very positive which makes it hard to keep him going . I also wake up thinking this is wrong then it hits me again . It’s just so hard to deal with . As you say it’s all palliative . I hope your hubby gets on well and you also .  Out lives have changed . It takes some coming to terms with . Kind regards 

  • my husband diagnoses has changed from small cell lung cancer to now wjat they think is b cell lymphoma i don’t understand how such mistakes are made he now has to have 2 more bigger biopsy and still we havent been told anything of anyone like a consultation with tesult he had 1.5ltrs drained yesterday where they mention he had lymphoma i rang his cancer team they hsve said they now think it is b cell lymphoma , but there is about 60 diffrent ones so still jo idea what whst we sre very angry aswell the dystem needs an overhaul good luck sweetie xx

  • Hi Thankyou . My mum had a follicular lymphoma and lived for ten years . I hope you get your answers , keep pushing for them . Good luck x 

  • Hi

    Sorry to hear your story, there seems to be a pattern   its so frustrating, my husband seems so positive  though a lot of that is for my benefit I'm sure, we were initially told radiotherapy isn't an option for us because of my husbands other health problems, so it's all hinging on the chemo at the moment, but so far  apart from losing some hair, he hasn't had many side effects, so we just keep putting one foot in front of the other and plod on, we've just been out to a local fishing lake to get a bit of fresh air, that's cheered him up, I suppose that's the key, always try to look forward to something you enjoy doing, I hope your husband also goes on as well as expected , and has a good day today, you as well, take care xx

  • Hi yes he’s def better if we get out . He’s going to be having a different chemo . Think it’s a second line one . Looks harsh but we will carry on with it . Good luck you to both x