Clinical trial, what happens when the funding runs out?

Hello there, how worrying for you!  I don’t have experience of this, but used to work in clinical research so will do my best to help. The short answer is that it will depend on the research trial, the funder and interim results of the trial. 

You will have been given information on the trial and signed an informed consent form to take part.  There should be information contained on that which explains what happens at the end of the research study.  There will also be contact details of who to contact if you need more information. That informed consent form would be my first port of call. 

If you can’t find what you need in that document, give me a shout and I’ll do my best to help.

All the best 

Thank you for the reply. At the beginning I was so poorly and beloved had covid so we weren't able to be together or remember with accuracy interviews. We will dig back through the paper work to see what's there.

Thank you for your kind reply, will investigate further.

You’re very welcome.  Lots of information is given at the beginning of a trial and it can be really hard to take it all in. I’m assuming that it was a  treatment trial (ie chemo or immunotherapy etc)  in which case it may be covered by the Cancer Drugs Fund which is there to fund effective cancer drugs before they become standard treatment. So it may be worth asking your consultant or the contact in the research team if it will be covered.  There is more information on the Cancer Drugs fund on the Cancer Research UK site here https://www.cancerresearchuk.org/about-cancer/treatment/access-to-treatment/cancer-drugs-fund-cdf#:~:text=The%20Cancer%20Drugs%20Fund%20(CDF,ways%20to%20access%20new%20medicines.

Its wonderful that you feel so well after such a brutal diagnosis.  Long may it continue.