Lung cancer

  • 30 replies
  • 170 subscribers
  • 1249 views

Hi everyone, I was just diagnosed with lung cancer and possible inclusion of adrenal gland involvement on both kidneys.  I'm feeling so lost right now, I cannot process what I've been told, it's like it's happening to someone else but that someone else is me.  I've had a PET scan and awaiting CT biopsy before knowing exactly what's what, but as kind as family and friends are being, nobody understands unless they are going through or been through a cancer diagnosis.  I just wanted to reach out to you all to ask how you all deal with it.  

  • I am in exactly the same boat. I'm also struggling to cope and take it all in. I have my Biopsy tomorrow and I'm scared 

  • Feels like an out of body experience, it's just not real, and you get on with daily life but it's not the same anymore, it's the not being in control of what's happening I find hardest.  I hope your biopsy goes well tomorrow, please let me know, it's good to share experiences, and I hope you have had messages from others who have had biopsy 's already, just for a bit of support and what to expect. 

  • I actually feel like I'm living someone else's nightmare. I just can't grasp it's actually real and happening to me. I'm scared about tomorrow but feel like it's a step towards a plan that I can then focus on. Atm I'm in limbo and no idea what the hell I'm doing. Thank you and I will keep you posted. Hope you are as OK as can be

  • I am a 1 year in , biopsy , lobectomy , chemo and I now have metastatic lung cancer and still some think , have they got it wrong and then the pain comes.

    My biopsy went through the the top of my back on the right.  I did have to stay in a ward for a while after as I was bleeding in my lung , but all went well.

  • Can I ask if the biopsy was painful ?  I know it's a necessary part of planning treatment, but I'm dreading how it feels having it done. 

  • It was a needle guided biopsy, the doctor was ipushing it in and then running into the outer room to see it was going right , that never hurt but as soon as it hit my lung or the tumor,  that hurt like he'll. When she guided the cutter through and cut it , I fealt nothing. Then you go back the ward and they do an xray in about 30-60 mins , that's when they knew I was bleeding and I could taste blood in my mouth. I was in about another 2 hours after that.

  • But remember everyone is different,  some feel some don't 

    Good luck for tomorrow,  I never Knew what was going to happen that day.

  • Thank you for sharing your honest experience, I am so greatful to have any knowledge, be it good or bad. 

  • Thanks for letting me know. I am absolutely dreading it, but it has to be done. Sob

  • Hi there, I had a CT guided biopsy in August last year to confirm a diagnosis of lung cancer.  The nodule was small 17mm so difficult to get at. The hardest thing to cope with was a lot of faffing getting me into the right position and then having to lie still.  Once the local anaesthetic went in there was no pain, just a feeling of pressure and then a click as they took the biopsy.  Very often if you are nervous a mild sedative is offered - I didn’t take them up on this.

    Afterwards I had to lie completely flat for either 30 minutes or an hour  (can’t remember which) in case of air leaks. After a couple of hours a chest x-ray confirmed all was well and that was me done.

    As I look back over the past 6 months, the absolute hardest thing for me were the first few weeks prior to the biopsy coping with a racing brain, and being convinced my life was ending prematurely - they were the most horrendous couple of weeks.

    Being able to talk to the specialist lung nurses and MacMillan was a godsend.  They told me they would be with me every step of the way and they were.

    Wishing you and Ruby128 all the very best

    Steph