Ok sorry i thisis a long winded post but i do get carried away on the keys sometimes and well getting sick of people saying i am so sorry .
Ok i know peopel mean well but why say i am so sorry to hear that , just because it is cancer does not mean i need the sorry i need support and i am sure with the fight to come days i will need my wife kicking me in the backside saying stop the feeling sorry and get on with it , i and sorry if i sound harsh but i found out 25 years ago after a major accident i was in hospital and on a ward for no hope really but then i watched a guy i nthe bed oppiste use his eyes to communicate to his wife messages , i kicked myself in the backside and said ok get off this bed stop the feelign sorry and fight back , i have from time to time felt crappy but i fight with the knowledge that tomorrow will be different sometimes it is not btu i still fight and well i wonder if people think i am mad here goes .
I was rushed in to hospital as the ambulance crew said not leaving you here as i collapsed once again on the bed so they took me in and then well test after test nothign showed until a young lad did a covid test now bare in mind we avoid peopel and mixing because i can not have the covid jab so we could not understand it but the docotr came in saying you have covid but it is fine i will hit you with loads of medication for it that is not the issue , so i laughed and looked up and said oh and i got cancer , his face hit the floor as he was struggling to find a wait to break it to my wife and i the wife looked at me and just said do not laugh i said why i think it is just another illness i have to beat and if they say there is hope i will beat it , the docotr just said how the hell can you know but from the way my body had been acting and the fact we lost 4 on my mums side to cancer and my sister i was sure one day it would come knocking so anyway i just laughed and am still laughing i rfuse to let cancer have the upper hand in the fight it will not stop me being a "T*T" as my wife says i will laugh joke and try and get past all that is coming and i will still laugh because4 i see cancer yes it is nasty but it is after all just another illness , i refuse to fear it because after the operation i am going to be having and after the chemo if i win then i will still laugh but if it came to the point they say well sorry nothign we can do i will laugh and say well i gave it a try .
Ok ramble over but i have so many questions i am sure i will be kicking round the forums searching anwsers , like why do people think i should be sad to have cancer i refuse to not laugh
hi steptoe i am not to good with the internet but i will try anyway you have a really good atitude i am just about to start radiotherapy and yes i will take one day at a time like any other illness
Hi chrisy you and me both , i am terrible withthe internet just had bt here to fix the internet for the bedroom because once i get out will be stuck for a few days and when the chemo hits i am sure i will have days in bed , well low and behold could not fix it now we been complaining for 9 yrs lol about linecrackle and so on but oh well i just have ot get out of bed and use the wired computer down here lol .
The atitude will take hits i am sure but again i refuse to let the illness take control , i have enough of that when i have the blackouts where i have lost hours of my life at a time not knowing what has happend hence the fighting atitude i refuse to let something i can fight back at win , the other issues we just have to manage as i say blackouts i have to try and get to a seat or to the floor before i fall but this cancer i can tell myself i will beat it i know it may win in the end but it is not getting the win without putting up a hell of a fight to win .
You stay positive i know it is hard when your sick , people say to me stay positive when i was first ill 25 years ago i use to want to scream you try it but i think the fight for the last 25 years has taught me just hang in there tomorrow will be different
big hugs from us
Well update time i am fuming right now just had a call from the nurse and been told i have tested positive for MRSA and the funny thing is i was in hospital for a week about 6 weeks ago when they foudn the cancer , i was swabbed then for MRSA and that was negative and i was asked not to wear my mask as i was on oxygen , well i and the wife are fussy when it comes to being clean shall i say we have over 20lites of 70% hand scrub with aloe in and we also well the house is like a operating threater .
I am a man but i was my hands before a tinckle and after and i never touch door handles in hospital i use tissue then bin it so you see a little paranoid on being clean .
So i am fuming because since coming home from hospital the only places we have been are hospital scans and then again they asked me to remove my mask and then the biopsy remove mask so we do not understand how i can now have MRSA , our food is home delivery yes we wear masks when it is dropped and all packets are wiped and fresh fruit washed so again you see why i am so mad .
The question i have is reading on MRSA it says betwen 5 - 7 days to clear and some case months so now i am worried the op will be cancelled which being as it was in 7 days time i am not like a cat on a hot tin roof here , the question for any nursing staff what else can i do to try and get rid of this other than use the wash and the antibiotics that i have to collect tomorrow ?
Hi steptoe that is frustrating for you, and I can understand how you must be worrying about your operation.
There are not any medically trained people in the group, as we are all cancer patients ourselves, or caring for a loved one with cancer. I would personally say that the wash and antibiotics are the only way to get rid of the mrsa, I wouldn’t have thought there was any other way.
No good fretting about how you caught it, these things happen unfortunately, no matter how hard we try to be on top of hygiene, these germs are very tiny, and very clever at attacking us! All you can do is do your best and continue with your hygiene routine.
I hope the antibiotics work quickly for you, you have time yet to get rid of it before the op.
Hi Chelle
Thank you for the reply , i wasn't sure if any of the nurses hung out on here as well , your right about the thinking to hard , i am very positive about the op i think the closer it is getting the more i am just worried they will cancel it for one reason or other but today been in collected the meds and will be starting them in the morning up until the day i go in then they said i will get a scrub down last thing that night or very early the next morning then in to threate .
I am just so mad because i just want it gto go straight forward i would give you some stories that would make you giggle because we always say well it had to happen , like the wifes new car being lost on a container ship in spain for 6 weeks lol yup i kid you not , but again i think as the op is getting closer i am just so thinking to hard on just keeping on track .
Hugs and thanks for the replies as i found a great post on stage 2 lung cancer on here and it really gave me a boost on the out look after the op hearing peoples stories has helped settle my brain a bit because i am not a good resting person but reading what they said has helped me say ok look you got to just go slow in recovery andn ot push to hard , see with the other illness i have always had to push the body on days when it feelsl ike it just wants to close down or stop it has taken years to work out ok now is the time to sit or just get on the floor before a blackout happens and you fall so with the cancer i have got to rein myself back for after the op baby steps so to speak .
thanks again
I nearly broke my hand few days ago as I got very angry, really lashed out after bawling my eyes out for the 100th time and belted the bed really hard telling that C word to go and f*** yourself, you're not having him and my dad. Pain shot up my arm into my neck. He's having bronchoscopy and biopsy today to see what this thing lit up on the PET-CT scan is and then next week is when he gets the correct diagnosis which I am petrified of.
I've noticed my 'friends' haven't even bothered with me since the news last week. Suddenly, they have disappeared but are seen boasting about their xmas parties on facebook.
STEPTOE - why don't you find somewhere away from others and really shout that C to go and f*** yourself like I did, felt better for little while.
Hi CrazyAboutBunnies1972
Oh you have not had the full outcome yet so i am keeping fingers crossed it may well be sometime else , i know they say it lichts up but i have also been told the one in my jaw may well be an annomoly because sometimes that can flash on for a millisecond .
I have noticed more people rinign to be honest i was like one day will the phone stop but again that is mostly neighbours but also a few friends i think a lot of people do not know what to say , mat be reach out to your closet friend and say your feeling left out , it is funny the amount of people also checking on my wife is amazing becuase i was worried having gone through cancer with my mum as a kid and there being no help for families back then but again lots have asked her if she is ok or needs help so that eased my worries a little .
If you do feel a little left out i am sure the people here will be ready to give out hugs as my macmilliab nurse keeps hugging me at the hospital nad so many of the nursing staff keep asking my wife is she ok and stuff like that .
Regarding the C rod i know it can get in your head and make you mad i just refuse to let it do it to me it would be al ong family story of a 14 yr old kid that well was not such a good kid after watching his mother die of C , me i just say ok cancer today you got the win you made me feel like rubbish but you are not going to break my fighting atitude , i hope you can find a way to get through the next few days and i do hope you get better than bad news but remember as a unit we can fight together .
I do understand how you feel because as i say as a kid well i felt left out on the outside but back then again no support was offered these days there is so much to try and help , i was amazed at how macmillian nurse came to find us on the day we were told what it was for sure and all the support from the nurses as well , if your friends are not phoning as i say may be reach out to the closet and left him/her know your struggling and well i am sure the true friends will step up for you .
kindest regards from my wife and i and a huge hug , but never feel alone macmillian have a chat online and a phone line
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