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After lots of tests including CT and PET scans colonoscopy and bronchoscopy I have had my results.  I have non small cell stage3 tumour in the middle of my left lung, Owing to where it is and other factors (I am 82) surgery is not an option  I am waiting for an appointment with the chemo unit for 3 bouts three weeks apart then CT scan to see how things are going  After I will be considered for radiotherapy.  Not looking forward to chemo as I am dreading the nausea plus they said hair loss. Actually I cannot believe I have been through these tests as I have a severe Hospital phobia . If anyone has any tips on coping with the chemo I would be very grateful. 

  • Hello Dwed. 

    Sorry you are facing chemo and radiotherapy but well done for beating your hospital phobia to do the tests. 

    there are all sorts of chemo combinations they might be planning to give you and they all effect people in different ways.  Many of them don’t turn out to be as horrendous as we imagine.
    I’ve just finished four rounds of carboplatin and pemetrexed. tiredness, headaches at times and increased tinnitus are the main problem. No nausea or weight loss. Lost very little hair. 

    other combinations could be very different. have your doctors told you the name of the drugs and what to expect? If you listed them then people on this forum who’ve  had the same could help more.

    Good luck and hope it all goes well. 

  • Thanks fir your reply. I have just checked my paperwork and the chemo drugs they have suggested are Paclitaxel and Carboplatin. I think I have become used to the cannulas (7 in 10 weeks) so have done some exposure therapy. I hope someone has had the same combination of drugs and can let me know how they went on with them. Wishing you well on your journey.

  • Thought I was starting chemo this week but at the MDT meeting one consultant wanted to check a nodule in the neck. I had the FNA (needle biopsy) this morning. The result will be discussed tomorrow at another MDT meeting. I still have my pre chemo assessment on Wednesday so hope I can start my treatment soon. I have really had to test my phobia hard  this last few weeks. 

  • I hope the results of the biopsy and MDT meeting are good and that you are able to get on with your treatment as planned. Even if it does mean more hospital visits! You should be proud of yourself for coping with your phobia so well.  Wishing you lots of luck. 

  • Now had my chemo pre assessment but they did not have results from FNA of neck.but had another blood test. I am to see consultant on Thursday and might  start chemo on Friday. I am to have 3 chemo bouts each 3 weeks apart. Then CT scan and see what is next. They have mentioned radiotherapy so will see what they decide  I am getting really worried now about coping with chemo. As I live in my own it gives my mind plenty of time to think. If anyone has experience of Paclitaxel and Carboplatin I would love to hear how you coped. Thinking of all of you going through your own journey through all if this. 

  • My mum is having vinorelbine and carboplatin and so far it’s been going fine. She has been more tired than normal but no other side effects that she’s noticed. Today is her third infusion. 
    Well done on facing your phobia and good luck with the treatment