Secondary Lung Cancer

Hello Bob

I have just read your post and gosh, you have been through the mill. I am also so sorry to read the consultant says  "it's probably incurable however treatment can be given for comfort and quality of life". So first off by me replying you post will go back to the top of the lung cancer forum and I hope it's seen by people on a similar cancer journey and you can get some insights as you have requested. I can't give you any answers as my cancer is a different cancer.

Secondly we do have another forum you could join join for support - this is the Living with incurable cancer forum - patients only . To join this group all you need to do is click on the link provided and once the page opens up you need to join the forum to post and access support from other forum members.

If you do need any further support - we have our support line on 0808 808 00 00 (8am to 8pm - 7 days a week). There are a cracking set of people on this number who can give you further support on your cancer journey.

I hope the above is of some help to you and I really wish you well with your ongoing treatment - if I can do anything else for you please let me know.

Best wishes - Brian.

Millibob said:

this is the Living with incurable cancer forum - patients only .

Thanks Brian, I have already joined and posted there. I was referred by someone on the Head & Neck Forum. It is a deep dark thing that we are all dealing with and any and all assistance is very helpful to me.

Bob

Hello Bob

Many thanks for the reply - It's my fault that one, I am the new kid on the block as far as "Community Champions" go I am only in my 3rd month and should have checked the forums you were in before I suggested you join that one - sorry about that, as you were already a member. 

Yes I know just where you are with it being "deep and dark". You cut your finger, you see the cut, put a plaster on the cut and next week it's healed and gone - you can't see cancer and have to put your trust in the medical professionals.

It's all to do with attitude and mental strength too - when I was diagnosed with Prostate Cancer I saw my PSA score of 182 and  that's normally incurable but treatable and I thought that was me - I am very lucky that about 3 weeks later I found it hadn't gone "walkabout" and I am on a "curative" treatment - but those first 3 weeks.......... I do feel for you.

I wish you the strength to get through your journey and do hope you get some answers. Stay strong.

Best wishes - Brian.

Hi Bob, I,m very much like yourself,base of tongue cancer 2019,all clear January 2020,had 2 chemo and 35 sessions of radiotherapy. Got most of my taste back,but still have to have water with sandwiches etc.Then this year cancer came back in right lung,biopsy confirmed it was secondary from the tongue cancer.at this point I was switched from lung department to once again head and neck .prognosis was stage 4,so not curable but treatable. Have started treatment, 4th chemo tomorrow, then two left to go,in the meantime just had CT scan to see where we are with tumors, reduction I'm hoping  chemo one afternoon every three weeks, in-between left to my own devices,no nausea, still eating but energy levels zero.if you want any advice please contact me and I'll try and help good luck Martin 

Hello Totolemar 

Cracking post, thank you. I just had to respond having read your signature - that's one hell of a statement but how true it is. That is possibly the best signature I have ever read!

Best wishes for your journey - you look like you are in control of the situation.

Kind Regards - Brian.