I have just joined this forum. These type of forums did not exist when I had breast cancer 32 year's ago, and basically there was nobody to turn to really other than the Oncologist for questions, certainly there was no help regarding the emotional side of what happens to people when diagnosed.
I have spent the last three weeks having tests, X-rays and a CT scan. I had an appointment with the consultant radiologist last Thursday to discuss the results of the CT scan, which showed a 2.5cm lesion in my upper left lung and an enlarged lymph node. The radiologist said he is 99% positive it is cancer. Because of the enlarged lymph node I am now awaiting a date for a PET scan to see if the lymph node is just reacting to the cancer present or it has spread to that lymph node. After the PET scan I have to have a lung biopsy, which is something I'm not looking forward to. Unfortunately I have to wait for 3-4 weeks which is worrying as, going by experience with my breast cancer, time is of the essence where cancer is concerned. I live in North Wales and my tests will involve three hospitals, this is because of facilities, or lack of, in these hospitals. I had my X-ray in one hospital, my CT scan in another hospital, and the PET scan will be done in another hospital. This certainly adds to the stress and waiting time.
I initially went to see my GP because a close friend of mine was diagnosed with inoperable terminal lung cancer and is on palliative chemotherapy. Unfortunately she has the aggressive SCLC, so because I had a tickly cough after having the flu over Christmas and New Year and catching Covid for the first time in May, I thought it would be best getting it checked out. Both these illnesses where unusual for me as I am usually very fit and well for my age (74), I always eat healthily and exercise with walking and cycling etc.
The thing I am struggling with now is the constant mind clutter that won't switch off. I try and keep busy to keep these thoughts at bay, but they are there constantly. It would be lovely if everything happened quickly, so no time waiting to dwell on things. The only positive in this is that the lesion is smallish and still called either a lesion or a nodularity and not a tumour. Because of this my radiologist said I may not need surgery, just either chemotherapy or radiotherapy and monitoring, but it all hinges on the PET scan. This is new to me, I always thought surgery was the usual thing to do.
I am usually a calm person that does not stress on things, but the last few weeks has really taken its toll on my stress and anxiety levels, which is affecting my sleep and daytime mood.
Apologies for the long post, I just need to offload to people who are going through the same thing.
Hi
For sure the waiting is the worst. When I first had cancer 18 years ago the treatments were limited. Now there are new ways of handling without surgery especially with lung involvement.
I have secondary breast cancer now in the lung and found the diagnosis process quite difficult. I took it one day at a time to avoid being overwhelmed.
You have a journey to take over the coming months but you can do this. There’s lots of support around too, if you’re worried about certain elements and need to talk I hear hood things about MacMillan counselling sessions. Lots of people here also to offload to who understand.
take care of yourself xxx one day at a time xxx
Thanks for your reply. I am sorry to hear about your diagnosis. As you say, processing the diagnosis can be hard going. When I had the breast cancer 32 year's ago I had a job and young family to take care of so that helped in keeping dark thoughts at bay by keeping busy.
I am having a word with myself daily about keeping positive, but until I get the PET scan and see what is happening with the lymph node, I can't really settle. The sad thing in all this is the fact that if my friend had not been diagnosed with terminal lung cancer I would never have gone to the GP with the tickly cough, so in a way she has probably helped me live a longer life.
I wish you all the luck in the world on your next stage, and I will take your advice on board xx
Hi Sanguinesse
Yes it’s tough especially second time around.
With my bowel cancer 2021 I was in constant flight or fright mode. Most of the time I couldn’t concentrate on anything that required focus.
I eventually decided there was nothing I could do about the cancer that was the medics job the waiting for a treatment plan was what I had to manage
I listened to apps on my phone that gave me head space. I tried to eat as healthy as I could but that not easy with rectal cancer and I did pelvic floor exercises twice a day to help post op
When I was called back a year later as there was nodules which proved to be cancer on my lungs. Well I was and am just angry
The treatment is amazing and there’s so much help out there.
MacMillan offer free CBT sessions that can help and talking here definitely got me through my bowel cancer and managing my stoma.
I hope you have a good weekend
Sending you a virtual hug
Ann
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007