Lung cancer

Yes I have non small , had top part of lung removed , then I found out I was stage 4. I am on the Chemo and Immunotherapy now , half was through 4 rounds of Chemo.

I am tired all the time , I am 58 and am Palliative also. I can have to Immunotherapy for 2 years  I am going to see if I want to continue on Immunotherapy,  after my chemo has finished.

He has the odd few hours where he will perk up . The medical team said he will feel better on the immunotherapy. I have contacted them and he’s going to see a dr at next appointment. Do you also get the extreme irritability? I’m so pleased you replied . Thankyou and good luck 

No irritability,  for me. I feel quite calm and numb. Good luck to your husband too x

That’s so good for you . He’s the opposite. 

Hello tuesday, my husband [aged 76]  has sclc too and has had both chemo and radiotherapy treatment.  The radiotherapy 'burnt' his trachea/oesophagus which made eating and drinking both painful and almost impossible.  However after 4 weeks of this it has now been sorted.  But you're right - he is so so totally exhausted and has no inclination to do anything at all.  I have found that I have to 'shield' him from tasks that would normally be his to do.  I have to be positive and [and this is hard!!] cheerful. The therapies affect each individual differently from what I understand.  Fatigue, tiredness, loss of motivation all seem to be a 'normal' reaction to the treatments. I really wish you and your husband all the best - and most importantly, look after yourself so you can look after him.  Love and Hugs, Zebra

Hello and Thankyou for the reply . It sounds like your husband has been thro the mill . I’m amazed at how people cope . My husband has only had chemo . No radiotherapy . As you say we try and stay cheerful and i also try to motivate him too . It’s difficult as I fractured my shoulder so in sling and can’t drive so that’s not helping matters . I think the main thing is he seems to have gone … personality wise . I’d like him back . But he’s fighting a big fight . Kind regards 

Hi Tuesday

I am on cycling 25 of my immunotherapy like your husband . I was very tired at the beging when I was doing the chemotherapy and immunotherapy together and although I get tired on the immunotherapy it's nothing like it was in the beginning. I think it takes time for me he body to adjust. I have a couple of days after treatment when I feel very tired and down then I start to pick up. 

If you tap on my avatar you can read about my treatment so far, I hope it helps, treatment is different for all of us even if we are being treated with the same medication, give it time as things settle down it could all change, I hope you found this helpful 

Have a good day

Donna x

Hi there Thankyou for the reply . He’s had one immunotherapy so far next one on Monday . He’s just shattered … far worse than when he was having chemo . Like you say , we were told should be less tired than on the Chemo too . He’s seeing Dr Monday so I’m hoping they’ll be able to help . I’m glad you are doing well . As we know it’s so hard when constantly unwell . But we will persist . Kind regards