Lung cancer

  • 3 replies
  • 167 subscribers
  • 504 views

Hello, I have just been diagnosed with lung cancer which has spread to some bones, initially they thought it was Ovarian cancer which had spread but they have now ruled it out. Apart from feeling tired I had no symptoms and just thought I was low on iron or vitamin D so this has come as a huge shock! I’m only 59 and the prognosis I have been given is not good. I now need a bone biopsy before they can decide what treatment to give me. They say it is treatable but not curable, and treatment can only keep it at bay for how long they’re not sure. So I’m not sure how long I have and I’m struggling to cope with it all! I’m trying to be strong for my family and daughter but feel so alone. I need some reassurance that I can deal with this and live with cancer for at least a few more years! I feel well apart from struggling to eat and sleep through the stress of it all! 

  • Hello Ida

    My diagnosis is lung I was diagnosed Dec 2021, if you tap on my avatar you can read my journey so far, incidentally we are the same age and well, I am treatable not curable. I am happy to chat about my situation if it helps you, the last 18 months has had it's ups and downs but I fight on, I know your scared right now I understand that, when you have a treatment plan things will be so much better. Please don't feel alone lots of us in this forum will help and support you including myself. Perhaps a good place to start is to speak to your GP about you eating and sleeping, they will be able to help with that at least. Things are always better when you can sleep well and eat.

    If I can help or answer any questions for you please feel free to message, for now I'm sending you my prayers and a big hug 

    Donna 

  • Thanks Donna, reading your story gives me hope. I just want to start treatment as things seem to be dragging on now. Being referred backwards and forwards from  respiratory to gynaecologist. Did the treatment make you feel very ill? The doctor told me I probably had 5 years at the most! I’m going to fight it every step of the way! 

  • Hiya

    My first chemotherapy was difficult I new it was going to strong but I wasn't prepared for the after effects, I developed sepsis, please don't focus on that to much I made a full recovery and my treatment has continued, there was a six week delay whilst my bloods got back on track, I have continued with immunotherapy and the side affects from that can be the same as chemotherapy they don't seem to be as harsh, I've had dry skin, sore throat, headaches joint pain nose bleeds, not all at the same time, just after my treatment I am usually fatigued for a few days and I usually have one of the side effects I've already listed, but the treatment is very doable, I don't know what my prognosis is, the advice I was given when I spoke to the specialist was to focus on my treatment plan, that is what I've done. I have regular 3 month scans to check what's happen and so far all seems ok, I have down days thank goodness not to often, when that happens I tend to come to this forum and say what I'm feeling, thankfully there is always someone to help.

    You will feel much better when you have a treatment plan and even better when treatment commences, everyone's experience is slightly different, I think the best way to deal with it is to be as positive as you can, get help when you need it, ask questions and get answers and make good memories. Don't let cancer rule you, you are in charge and you make the decisions.

    Hope this helps, always happy to chat

    Donna x