Hello everyone, 10 weeks ago I was diagnosed with stage 4 lung cancer. aAter being referred for a bronchoscopy, it is believed some of the numbing agent got into my lungs and the procedure had to stop. I was then referred to A & E and spent two week in hospital. As a result of this I now require assisted oxygen 24/7.
Prior to this I was an active 56 year old who took her dogs on walks, carried out 2 volunteering roles and run a family home. I am now as you can imagine pretty inactive, out of breath, and 4 biopsies later still waiting for a treatment plan. I’m not sure I’m asking for any advise at the moment, I just thought I’d say hello and tell you some of my story.
Hello Debdar
Welcome to the Online Community.
I am sorry to see that you have had a diagnosis of lung cancer and that you are having problems following the bronchoscopy. It must be hard to need assisted oxygen when you are usually a fit and active person.
I see that you have joined the lung cancer forum and this is a good place to share your journey with others who are going through the same thing. I hope that you find the online community as informative and helpful as I have done.
It is hard waiting around for a treatment plan and I hope that you hear back soon about the next steps. I found that once I knew what was going to happen I did feel a bit better.
If there is anything that you need please do ask but if you feel it would be helpful to chat to anyone at some point, then the support line number is at the bottom of this. They are lovely on there and can point you in the right direction or just listen, if that is what you need.
Jane
Hi Debdar, welcome to the group, but so sorry you find yourself here. Being told you have stage 4 lung cancer is scary, and all the different scans and tests that go along with that are nerve racking. I am so sorry to hear that some numbing agent got into your lungs during the bronchoscopy! I haven’t heard of this happening to anyone before, so I am sorry I can’t offer any advice with that. What I can share with you is my journey, which will hopefully alleviate some of your fears.
When I was diagnosed back in 2014 with sarcoma in my lungs, like yourself, I had gone from a very active 45 year old, to being unable to walk the length of the room. I won’t lie, the first year was extremely tough. I had surgery, radiotherapy and then onto hormone treatment which I am still on. There was a period of about 6 months when I was in a wheelchair, and I never thought I would get back to being my old self. But I did! I am still incurable but treatable, and I am still on the hormone medication which brings with it lots of horrible side effects, but if you saw me, you wouldn’t think there was anything wrong.
You are going through an awful time at the moment, but things can and will get better. You will get back to walking your dogs, and volunteering again. Hopefully the treatment plan won’t be too far away now. Let us know when that has been decided and what treatment you will be on x
