Hello and apologies if I’ve asked this question before. After 18 months of watching lung lesions, CT and Pet Scans and 2 bronchoscopies I was told I had numerous nodules, mostly cut glass but 3 were concerning as over the 18 months they’d grown.
I was scheduled for rt upper lobectomy surgery last December which had to be cancelled at the last minute. Following another CT scan and a consultation with the surgeon he recommended removing the whole of my rt lung and mentioned I could have future problems with my left lung which had small nodules.
I was shaken up by the thought of the surgery and radiotherapy was also proposed as a treatment. A GP friend came with me to the consultation and she advised me not to go ahead with the surgery. I felt the same way and have completed radiotherapy in mid March. I now have to wait until mid June for a CT SCAN to find out if the radiotherapy has worked.
My question is - has anyone else opted for rt as opposed to radical surgery and if so how did it work out for you? Thanks for any help or advice you can offer
Hi Deni123 welcome to the group, but sorry you find yourself here. I have had radiotherapy, but surgery wasn’t an option for me. I wish it had of been, I hate the thought of the tumours still being there, and we are always told that surgery is the best option for a cure.
I can understand the thought of surgery being daunting, but I think we have to trust our oncologists as they are the experts. There are a few posts on here from people who have had lung removal, but hopefully someone will be along soon to share their experience with you.
Hi Chelle and thanks so much for your reply. I understand that most people would want the tumours removed but I visit my daughter and family in Australia once a year and I was worried I may never be able to fly long haul again due to breathlessness from the surgery. I’ll have to wait for the results of the scan in June / July to see if the rt has blasted the darn tumours. I’ve recovered from the rt quite well. There is a slim possibility of surgery if the rt hasn’t sufficiently worked.
Hoping someone will respond who’s had the same experience as me but thanks once more and I hope you’re doing well.
I had surgery bottom right lobectomy and top segment so it’s minor up to your proposed op
There’s lots of lesions which bothers me.
I was told it’s the gold star treatment well I’m breathless all of the time and have a wracking cough. I tire and don’t feel I have any energy. I’m not one for regrets however I’m very close to wishing I’d stayed away from the op and had SABR
I wouldn’t have it again! Even with clear margins I’ve had three years of bowel cancer an Ileostomy then reversed now lung. I want a break from all of it
It may reassure you to know that not all surgeries are a quick fix.
The lung taken is missed and yours would be much more to cope with
Good luck with you results
Ann
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