Hospice care

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Hi, my 85 yr old mum has been diagnosed with lung cancer and breast cancer. She hasn’t been offered any treatment for the lung cancer and has been placed under the care of the local hospice. 
They call every week or so for an update of mums condition but I am unclear as to when will she will be taken to the hospice. She lives alone and her condition is deteriorating slowly but surely. I’m wondering if they decide when she needs to be admitted into their care or if they are waiting for me to make a decision. 

  • Hi Tinab68 welcome to the group, but I am so sorry to hear about your mum.This must be very hard for you, I know how scared I was when my mum was at end of life care. We managed to keep my mum at home for as long as we could, as that was her wish, but she ended up going to the hospice for the last 24 hours of her life. 

    Do not be afraid to talk to the hospice staff and ask them what the expectations are for your mum. The staff at hospices are always very approachable. I will also put a link below with some information about caring for someone with a terminal cancer. I thought you may find it helpful.

    Caring for someone with an incurable illness

    You can also call the Macmillan support line on 0808 808 00 00. They are available 7 days a week from 8am until 8pm. 

    Chelle 

    Try to be a rainbow,in somebody else's cloud
    Maya Angelou

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  • Hi Chellisimo

    thankyou for your kind reply. 

    Mum will not be afraid of going into the hospice when the time comes but I’m unclear as to how that decision will be made. She lives in assisted living and has carer going in 3 times a day but that’s only to prepare food so for just 15 mins at a time. Mum had a fall yesterday and the carers are not allowed to lift her back up so she has to wait until a family member can get to her which sometimes can be up to an hr. 
    she’s very confused at the moment and the hospice suggested she may have a urine infection so I’m waiting to get that done. 
    I’m just concerned that she needs more care than she’s getting at the moment but as she’s still capable of getting dressed etc that she’s not poorly enough to go into the hospice. 
    what signs of decline would take the decision out of my hands? 

  • Oh your poor mum. A urine infection can be nasty, and will make her feel very unwell and confused. I am sorry she had a fall, that must of been very upsetting for her, especially as the carers were unable to help her up! 

    I think when we hear hospice care we assume it means end of life is near, but this is not the case. Hospice care is a style of care which is provided at home to provide their medical and emotional needs. As mums health does decline she may have nurses coming to her home as well as the carers, and a decision for her to move to the hospice will probably only be when her pain can no longer be controlled at home. Have you spoken to anyone in her medical team about an expected time scale?

    Here in the lung group you will find lots of people who are undergoing treatment and are not at the stage that your mum is sadly at, but there is another group here on the online community you may want to join where you can chat to people in a similar situation to yourself. 

    Supporting someone with incurable cancer forum 

    I hope mums water infection is sorted quickly and she is more comfortable at home. 

    Chelle 

    Try to be a rainbow,in somebody else's cloud
    Maya Angelou

    Community Champion badge
  • Hi Chelle

    Nobody has given us a timeframe at all, the doctor said they couldn’t anticipate when it will be so we’re in the dark with that. It’s like just waiting for her to deteriorate really. 

    macmillan call weekly and offer advise but haven’t yet arranged home care for her. Mums pain is under control with Morphine patches and there are ‘just in case’ meds locked away for later. 

    thank you for your kind words, I will try and find the other chat group you mentioned x 

  • It’s a horrible situation to be in. It sounds like things are in place for when needed. There is a link in my previous post which will take you to the support group. Wishing you and your mum all the very best x 

    Chelle 

    Try to be a rainbow,in somebody else's cloud
    Maya Angelou

    Community Champion badge
  • Thank you so much x 

    take care x