Saying hello

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Hello 

where to start. Just before Christmas my wife started to lose her appetite, lost weight and developed a unshakeable cough. Initially we put it down to a winter cold and possibly flu. The condition wasn’t getting better and by early February we booked into the doctors....she never sees the doctors!

he immediately booked her in for a chest X-ray, this led to a cat scan and by early March we had a diagnosis of lung cancer. The cancer was in both lungs and described as incurable and inoperable. Blood tests, PET Scan, Lung function clinic, Bronchoscope, ENT appointment and stuff of the like have followed. 

Her symptoms have been, a massive loss of appetite and therefore frightening weight loss. Her taste for food has completely changed. She’s now on fluids food supplement drinks and yoghurts. She’s finds swallowing solids very difficult. Consequently she has become very tired and her mobility is pretty shakey. My wife is disappearing and I wish I knew what to do. We’ve had a telephone call from the dieticians who say “little and often” and take in whatever you can.

The end of March was our last Doctor contact. We have contact with the Macmillan team who say we’re still awaiting some results and we need to wait till mid May when we’re seeing the oncologist and the team. I keep thinking about her deterioration over the last three weeks and I’m struggling with the idea that it’ll be another three weeks till we see someone.

question please, how do people cope with this, I’ve cried down phones, I realise the pressures everyone’s under but I feel so completely helpless. We have our 46th wedding anniversary tomorrow, we retired ten months ago, we had plans.  

  • Your timelime sounds very similar to my mum's, except with my mum it's the spread to her bones on top that is causing us the most issues (pain and mobility).

    I don't know how people cope with this. Personally we've had ill health in our family to cope with on top of this as carers, yet you just do your best and keep on going. I put on a brave face as best I can and do what I can for my parents, and try to take one day at a time - it's all you can do.

    Prepare, plan, be organised, look after yourself, take all the help, advice and medication offered to you, and support from anybody who offers it. It's all a process - going through emotions, phone calls, medication, appointment, adjustment. I wish you all the best on your journey.

    You're not alone here.

  • Hi Mav

    thank you for your reply and kind thoughts. It certainly is a painful journey, I guess we’re all stepping into the unknown. I send love and friendship .... it’s good to know we’re not alone

  • Good morning how

    What a journey so far, and very frightening for both of you, wait for results is always difficult and it seems to take for ever and I must say in your case it does seem unduly long. Everyone copes differently, I used this forum for support and the people here are great mainly because they all know how it feels, they don't just say it they live it. If you tap on my avatar you can read my journey so far. It's not been easy but one thing I did resist was googling anything. I mainly copes with the waiting by keeping busy cleaning and sorting things and when I needed an ear I came to the forum and I got good sound advise and suppirt.

    Not much help to you at the moment but if you want a chat please feel free to message

    Donna

  • Thank you Donna. We’re finding our way through the maze. I’m thinking of calling our Macmillan contact? I’d like someone to assess my wife as the wait for another three weeks seems too long. I don’t think I could bare someone saying “if only we’d started treatment five weeks ago”.. 

    thank you for sharing your thoughts and time, it means a lot.

  • Hi I’m new, just been diagnosed waiting for surgery . so not familiar with correct processes . When I last spoke to my GP they asked me to get in touch with them if I needed anything . Perhaps you could do this , they could examine her and contact the oncologist for you .  My thoughts are with you both .xx

  • Thank you, yes I’m going to ring our doctors on Monday. Love and thoughts are with you xx