Lung cancer

Hi Cells welcome to the group, but sorry you find yourself here. It is terrifying when you are told that you might have cancer, and nothing can ever prepare you for hearing those words.  What you are going through at the moment with all the tests and waiting for results is the most awful period of time. At the moment you are in limbo, you don’t know what these results will show, but these tests seem to take forever! I know, I’ve been there. 

All you can do is take one day at a time. No amount of worrying is going to make the results come any quicker. Do you have any one supporting you through this at home? You can also talk to someone at the Macmillan support line if you need to talk to someone. It is a free call number and is completely confidential. They are open 7 days a week from 8am until 8pm on 0808 808 00 00. 

Please do come here and chat as much as you need. We may not always know the answers, but we have been through what you are going through right now, so nobody understands more than us. 

Take care x 

Hi Cells,

Agreed, this stage of the treatment journey is the most frightening thing ever.

I'm a bit of a control freak, and handing my life over to others was my worst nightmare. What helped me was to get a bit of control back. All the statistics say people who exercise survive longer - so I got extra serious about being fit. I figured best case it would set me up for immunotherapy and worst case I would be in good shape to survive surgery. I got my hospital suitcase packed with all I might need and ready by the front door in case I had to go in a hurry. I got all my bills on direct debit. And so on. If cancer was going to be my new normal at least I would still be in charge.

All that kind of kept me busy and took my mind off things too.

kind regards,
Steve

Hi chelle, thanks i know its one day at a time, but i cant get worse outcome out of my head, yes ive got family support, but im upbeat in front of them.

Cant fault nhs moving really fast, im terrified of the unknown, 

It helps hearing from you guys 

Cells x

Hi steve, i dont like not being in control, already fast forwarding ahead...im trying to cope best i can, positive thoughts fighting the negative ones,

Im still working etc, and i feel ok , doc reckon its caught quick, sooo scarey

Thanks like i said to chelle, good you guys are here for support

I hope you and chelle are on road to recovery

Cells x

Hi Cells ,I am sorry you find yourself here ,please try not to get ahead of yourself ,the PET scan is not scary in its self ,its the outcome you are worried about ,I found myself in tears just before i had the PET scan ,but the staff were brilliant ,as everyone else has said one day at a time ,the PET scan will let them and you know what your dealing with .Try to find something to keep you busy and not dwelling ,and come on here to chat ,there is always someone ,take care  C.K

Hi Christi,

Yh its the out come im scared of, spoke to mcmillian nurse not long ago.. i am so scared for me, but more my family...

Plannimg ahead   .terrified

Soz, u guys been through this, hope all going well for u all x sorry this is new to me  xx

Hey my names ali xx

Hi im doing my best, whatever that is..scared  understatement, told hub im making plans ,so no one needs to worry..just had bad experience in past with cancer 

X

Cells ,18 months ago i was pertrified ,i did not know how to tell my family ,my mother was dying and i did not want them to suffer even more ,so there was just me and my husband that knew .when i got the results from the PET scan and knew i could cope I told the rest of my family ,I had a 8mm nodule ,which at first did not light up so they thought it was benign ,then 6 months later it had doubled in size ,so they arranged an operation last year to remove the middle lobe of my lung ,when i had it removed ,it turned out it was 20 % cancerouse ,but it was gone ,my family coped better than i thought they would especially as they tend to be very OTT .last week i had my 6 month follow up and everything is ok .Do what you feel you can cope with ,you would not be normal if you were not scared ,so hang in there ,people are here to talk to no matter how bad you feel

Hi christine, 

Thanks for yr message, it was mentioned that they might remove upper lobe, but i guess results of petscan i had today, will show them more.

Think theyre on about doing ct guided biopsy to.

The waiting is horrible, how long after yr petscan did they operate?

Its really helpful the support group

Thankyou all

Ali x

Hi Ali ,when i had my first Pet scan it was not showing as cancer ,so after my 2nd Pet Scan which was in May last year it had doubled ,so my operation was in July last year ,I could not have a biopsy because the nodule was in a difficult place for them to do the biopsy ,I know its hard but do try not  to worry ,you cant do anything till you know what your facing ,and its Christie ,not christine ,,you should get your results pretty quickly ,and your team will sort out what needs to be done ,keep me updated x C.K