My Mums stage 4 lung cancer

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I am new to this forum. 

My lovely mum is 78, she has early stages of Alzheimer's. On the 22/12/23 she was diagnosed with lung cancer, such a horrid shock as lost my dad to lung cancer 8 years ago. 

Mum went into have a procedure done on her coccyx on the 15th December under general anaesthesia, when they where waking her up they lost all her sats and had to do CPR.

This followed some tests to see if her heart was okay, she has a healthy heart but unfortunately they found a mass on her lung. Lots of tests done since then and they have said it is stage 4, it has spread to her lymph nodes in her chest wall and adrenal glands.

We went to see the consultant on Tuesday, she now needs to have a CT guided lung biopsy so they know what type it is before they offer any treatment, however the consultant has said that this is something we need to think about carefully, because of what happened in December, it will be a local anaesthetic rather than a general, but they still don't know why mums body reacted the way it did so it doesn't come without risk. So in a nutshell if she has the biopsy they will offer treatment to prolong and manage symptoms, but if she doesn't they cant offer treatment. 

Mum is adamant that she wants to go ahead with it.

Also my daughter is getting married in 9 weeks time, my brother doesn't think she should start any treatment until after the wedding as he thinks that it will spoil the day for her as most likely the treatment will take its toll on her. I however disagree and think we should start ASAP.

Thank you for listening xx 

  • Hi flower23, sorry I missed your post, I have only just seen it. 
    What a horrible situation you are in. Your poor mum, having to have CPR, what a scary time for you all. 

    I wouldn’t know what to suggest as to regards the biopsy. After what happened with the general anaesthetic I can understand you being nervous about mum having a procedure. It has been a few days now since you posted, so I wonder if a decision has been made about that ? 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • Hello Flower,

    How difficult for all of you and I can understand your concerns about your Mum. As long as she is capable of making the decision, it could be unkind to stop her. As you say, the medics won’t give any treatment until they know what they are trying to treat. These days there are so many different treatments that they have to make an informed decision to give your Mum her best chances. 

    I was offered chemo post lobectomy but it wasn’t considered essential because the statical information suggested it would only be advantageous to 1 in 20 people. I did consult my husband and children on their views but I made the final choice. By the way, I’m 70 and have no other health issues. I wish you and your Mum all the best.

    Daisy xx

  • Hi Chelle

    Thank you so much or your reply, the biopsy is going ahead on Friday. As you can imagine we are all nervous but mum really wants to give it a go.

    Hopefully we will have a treatment plan soon after. x

  • Hi Daisy

    Thank you so much for your reply, yes it was totally mums decision and she wants to have it done. The appointment is on Friday. 

    I think she feels that its the end of the road without it and she's not ready to give up yet. I love and admire her bravery, I will be with her every step of the way. xx 

  • Hello again,

    I just wanted to say how much I appreciated the support of my family. I didn’t want to talk about it until I knew what the treatment would be. I think they were all worrying about me, just as I was worrying about them. Well done for all the support and I hope you’ll have your Mum for a long while yet.

    All the best for Friday,

    Daisy xxBouquet

  • I think I would feel exactly the same as your mum, I would want to give it a go. I hope everything goes smoothly and she has a treatment plan in place soon.

    I have been in both positions, my mum had cancer (ovarian) and I cared for her and was with her through every appointment and treatment.  I was diagnosed myself one year after we lost her, so now my daughters are in the same shoes I was caring for mum.  It is so hard watching someone you love going through this. Your mum sounds like a tough cookie, but if she does want to talk to someone Macmillan can arrange a buddie for her. A Macmillan buddie is a volunteer who will phone once a week to give your mum the support she needs. We all know how much easier it is to talk to a someone who isn’t connected to us. Call 0808 808 00 00 and they can arrange that for you.

    Sending you both hugs x 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • I am so sorry about your mum and your own health, It sounds like you had had a tough time of it. How wonderfully  inspiring of you to give others your words of encouragement and support. xx

    Thank you, I wasn't aware of this, that might be helpful for mum.

    Thanks again and sending hugs back  xx