Hi all,
I am 32 and a mum of two boys (8 and 3yrs old).
My dad turns 70 in March, but a week before Christmas was rushed to A&E with severe chest pains.
We assumed the worst was going to be cardiac arrest...
They did an x-ray and then a CT scan and revealed that he has a 4.5cm x 3.8cm (1.8" x 1.5") tumour in his right lung.
The report also said it has started to erode one of his ribs and also one of his lymph nodes was enlarged.
He has since had an MRI, 2 lung function tests, a lung & lymph node biopsy and PET-CT scan.
He has only ever heard from the Dr once and that was over the phone.
On that phonecall we were told my dad couldn't have surgery to remove the tumour due to the location, and that the cancer has just started to spread to the nearby lymph node.
They've said he can start radiotherapy soon, but we are just waiting with no clue what to do and what is going on.
He is in a lot of pain, cannot sleep at night etc and spends most of the day in and out of sleep. He had codeine pain relief for about a week and is already upgraded to Morphine, which isn't always helping.
I was hoping to join here to get some more info, as I don't have much yet.
I don't know what type of lung cancer he has or what stage it is, but from what I've read so far I'm assuming it's stage 3 and the outlook doesn't look good.
Naturally I am distraught and don't know what to do. I spend most nights crying. I haven't told my sons what is going on yet but their grandad is their best friend and so I'm just distraught at what this year is likely to bring. I can see the hopeful look some days on my dads face and my heart just sinks when I think deep down the outlook won't be positive.
It has been 6 weeks and no treatment has been started. Is this normal? I just feel they are just giving him pain relief and not really talking to us. We were told a cancer care nurse would ring us about 10 days ago and it hasn't happened.
He had his PET-CT can today but the Dr isn't ringing him until next Friday. Are we likely to get his results then and then a treatment plan?
At this point my dad can't sleep upstairs in bed either. He is sleeping downstairs in the living room, elevated on multiple pillows. However, he just can't sleep for very long as the pain gets too much in his chest, so he has to keep turning. He keeps saying some days he want us to take him back to A&E for help with the pain, but when he was there in December he was left in the corridor for 2 days, so I don't want to relive that experience...
Can anyone please give any insight into what to expect next please?
Hi Valentine28,
Firstly I am so sorry about your dad’s unfortunate news. Secondly I’m in a similar boat to you. I’m 37 and my Dad (62) was diagnosed with lung cancer in his lymph nodes on 10th January after having chest x-ray, lung function test and lung biopsy. He’s had all the same tests as your dad but unfortunately in my dads case, the PET scan revealed that it has spread to his stomach lymph node, brain and bones. He had the final test which was a contrast dye MRI on his brain yesterday and he is a meeting with his oncologist on Thursday to get the results and to discuss starting treatment. It was a week after the PET scan, brain CT scan and gastroscopy that my Dad got the results but he still hasn’t seen the oncologist or started treatment so I think looking at your dads timeline, it’s pretty similar to my dads. I’m assuming they will discuss the results of your dad’s PET scan next Friday and if they found anything, they will then do further tests and if it’s all clear, they will discuss treatment options. I know the waiting is the hardest and if you were due a call from the nurse 10 days ago then I would chase it up especially as your dad is in so much pain. I don’t know if any of the information I have provided is helpful to you but please know that you are not alone ️
Hi MissP,
I appreciate you responding so much! This is all new to us so I do not even know how to act/behave/what to do in general.
Thank you so much for the clarity. I had no clue what to expect. That has helped a lot.
I am really sorry that you are going through the same thing I hope he is not in pain
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