New here Mum with lung cancer & Brain metastases

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Hi everyone 

Only just found this group probably because I've been coping on my own but last night Christmas eve mum took a fall and becoame confused. She was in hospital one night back home with me tonight.

She was diagnosed with lung cancer oct 2022 in one lung no mass, several small ones. Had 4 rounds of chemo and immuno therapy and some went some should some stayed same and is still thr case. However the immuno therapy caused her liver to be inflamed and all treatment stopped while high amounts of steroids were taken for 4 months.  

Then in August we discovered 2 small legions in her brain.  Since then she's been ok on steroids, when's she not on them she no energy and sleeps constantly, more than bring awake.

So she went back in steroids only 2mg to manage symptoms and all ok until last night, it's like she just changed over night. She can't stay awake, she's a tiny bit confused but I can't believe how quickly the difference is in her.

Has anyone else experienced this with your relative?

I come to my own understanding that this is now her illness progressing and wonder how long this condition can last now.  I've not asked doctors as I know having read other stories it's different fir everyone and I don't want to know to be honest, but I'm wondering what the next stage of progression will be.

It's heartbreaking to see this illness take its grip

Thank you for reading mine and my mum's story xx

  • Hi

    Your Mum needs to be seen by her cancer team, with possibly blood test and/or a brain MRI scan to check that the brain legions have not grown. or that nothing else is going on . The tiredness and confusion could simply be down to dehydration or an infection. .

    The problem with having cancer is that  all other issues are assumed to be cancer related; this is not always the case.

    Hope this helps a bit.

    Kegsy x

    "If you are going through hell, keep going" ; Sir Winston Churchill
    " Cancer may take my life; however it will not become my life" Kegsy August 2011
  • Hi Kegsy

    Thank you so much for replying. I'm going tk get onto her medical team tomorrow.

    Yes the hospital did a scan yesterday and nothing has changed and there no infection either, all her bloods are clear 

    I'll keep her hydrated as well.

    Thank you xx