Afraid and desperately sad. Any advice please

Hi Jacqueline L welcome to the group, but sorry to hear about your mum. 

Inoperable lung cancer doesn’t mean your mum won’t be able to have treatment, so please do not give up hope. Lots of people here are inoperable but have had successful treatment so please do not give up hope.

I would think that your mum is struggling because of her low blood platelets. When your bloods are low it can make you feel extremely unwell, low energy and mood. 

Waiting for test results is extremely difficult. The fear of the unknown and what lies ahead is terrifying. Supporting a loved one with cancer is very hard. You are doing all that you can at the moment just by being there for your mum. She may not feel like going out, but will appreciate you going to see her. 

If you need to talk to someone about your mum the Macmillan support line is available 7 days a week from 8am until 8pm on 0808 808 00 00. 

I hope your mum gets her results soon and gets a treatment plan in place. Let us know how she gets on x 

Hi Jacqueline 

It doesn’t mean your mum can’t be treated, I am treatable but not curable. You might like to read my profile, I have lung cancer and secondary bone cancer, I have a treatment plan, so please don’t ever give up, cancer treatment has come a long way in recent years.

please feel free to ask me anything, I will give a honest answer from my perspective and support you if I can.

Hugs for now 
Donna

Jacqueline

It's going to be hard for you all. All you can do is try stay positive and maybe do at home based family activities to create some more wonderful memories. Maybe your mum will be more up for at home or local things?

All the best to you all xx

Hi Hamhat, I'm a newbie on hear I've just read your profile, and you are in the same treatment as me. I've also stage 4 lung with secondary bone cancer .I had my first immunotherapy yesterday and am going back today for the first dose of Paxlitaxel and carboplatin .I read on your profile that you had ceptis after your first treatment. I'm petrified, and I will leave warning signs until late .Can you tell me what symptoms you had, and maybe we can keep in touch to update each other on the treatment? Thank you Debbie .

Hi Debbie, 

I am sorry you find yourself joining this group. I am happy to answer your questions. I had exactly the same chemotherapy treatment and Immunotherapy Atezolizumab and Bevacizumab I had both treatments on the same day. Firstly please let me say everyone reacts differently to treatment, even though we have the same treatments it doesn’t mean you will contract sepsis as I did, and due to quick treatment by my doctors I recovered very quickly. I was given great advice by my consultant and specialist nurse regarding side effects and what to look out for. It wasn’t that I ignored them, I just didn’t understand what I was facing. I had my treat on a Friday came home and I was doing well for the next 10 days. 
on day 10 I felt very tired and out of sorts, I didn’t have any of the standard side affects I had been advised to look out for. All I can tell you factually was I felt out of sorts and very tired. I went to rest  and the following day I woke up covered in a rash. I immediately called the emergency number and was brought into hospital.

I spent a week in hospital and my chemotherapy medication was adjusted and I recovered very well. I’ve not had any repeat incidents. My next cycle of treatment was delayed for 6 weeks as it took time for my system to recover and for my levels to return to normal.

I completed 4 cycles of the chemotherapy and immunotherapy at the end of April I continue with my immunotherapy cycles and I’m doing very well on them. Please be assured your medical team will have offered you he best treatment for you cancer and I really do understand when you say you are scared, my advise is if you experience ANY symptoms you have not had before and I mean any including headache, sickness, dizziness, rashes anything please call you emergency number, you should have been given this number by your consultant or your specialist nurse.

I have sent you a friends request if you want to chat outside this form all you need do is accept the request. In the meantime take care, my thoughts are with you.

hugs

Donna

Hi Steph, like Hamhat, I'm am also Stage 4 nsclc wirh mets to bones.

Am on a treatment plan which is good.

Hi Jacqueline, 

Hopefully your mum will now be put on a Treatment Plan.

The initial diagnosis, meeting  with the Respiratory Consultant and bone biopsy are the most stressful bits, as everything is still new and you are reeling with shock.

Onnce you see the Oncologist and have a plan in place, you will all settle down a bit. It might not seem like it at the moment, but the shock will wear off.  Xx