Hi - new to this group

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Hi 

My husband has recently been diagnosed with Stage 3 non-small cell lung cancer and if I am being honest the last 8 months have been a rollercoaster.  He was unwell over christmas/new year last year with pneumonia which resulted in our GP sending him for an x-ray as she didn't like the sound of his cough - that then turned into a series of CT scan, biopsies, PET scan, bronchoscopy, mri brain scan, ultrasound, colonscopy to remove 4 polyps to then starting 4 cycles of Chemo (2 different doses) and immunotheraphy.    To be honest I don't think our feet have touched the ground in those last 8 months from being told there is a 3cm area in the right lower lobe of his right lung, cancer cells in his chest and an area in his neck.   He has now finished his 4 cycles of chemo which have been horrendous for him - mostly the severe leg pain from the Filgrastrim injections I have had to give him for 7 days after each cycle.   It has been emotionally hard and draining watching your loved one go through something very similar to my mum who I lost to Lung Cancer nearly 10 years so it has been hard to think and believe that i wont go through that again.  

We have had some positive news that the cancer has shrunk to over half in his lung and that there are no new cancer cells that have developed - receiving that news has made the above journey feel worth it for him knowing that everything he has been and going through has helped.   We have another appt with his oncologist on Thursday to talk about the next steps.   

I have come on here to see if anyone else has experienced the same kind of rollercoaster journey with their partner, wife, husband and how they have come to terms and how they have managed to care for their loved one.

Thank you x

  • Hi Munders48, I am sorry to hear about your husband. It must be extremely stressful for you, supporting your husband after losing your mum to the same disease. My mum passed away in 2013 then I was diagnosed myself one year and one day later. My Dad still struggles with the fact I have cancer and won't talk about it. 

    You may also want to look at the other support groups on the community for yourself.

    Family and friends 

    Carers only

    Are both very supportive groups with other members going through a similar situation to yourself. 

    It sounds like the treatment has been very tough, but that is fantastic news that the cancer has shrunk by half. You both must be over the moon with that news. Good luck with the oncology appointment tomorrow, please do let us know how he gets on.  xx 

    Chelle 

    Try to be a rainbow,in somebody else's cloud
    Maya Angelou

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  • Hi Chellesimo, thank you for your reply and I am sorry to hear about your diagnosis and the loss of your mum.   I think I have joined the Carers only group but I will look into the Family & Friends group too.   I hope you are coping ok with your diagnosis and you are getting some support and love from friends and family - I can understand the struggle your Dad must be feeling but am sure that will get easier for him knowing that you need his support.  Wish you all the very best and happy to chat anytime - take care xxx