Hello Everyone

Dear Jamie, 

sorry to hear about your diagnosis. 
Are you being offered treatment ? 
my husband has the same diagnosis but isn’t being offered treatment. 
He slows down his breathing and uses his diaphragm more than his chest this seems to help. 
If breathlessness is an issue check with your nurses. 

Best Wishes 

M

Oh Jamie.. I feel your fear and pain.

My husband who's 54 was diagnosed with stage 3b lung cancer back in November, after multiple tumours being treated with Radiotherapy and managing only 1 round of chemo + immunotherapy along with a 3 week hospital stay for pneumonitis and fluid on the lung and around the heart. He sadly past away at home yesterday morning after being told that there was no further treatment that could be offered.

If you can get on to some oxygen and nebuliser sooner rather than later, that will help with the breathlessness. 

My husband left behind myself and 2 children... 

My advice for the future is ensure you have an up to date will and move bank accounts, subscriptions, rent, amenities into your partner's name before much else happens..

My heart goes out to you and your family in these coming weeks.

Please feel free to contact me again if there is any info I can help you with. Xxx

Sending love. My husband is stage 4  lung cancer. Atm he has responded well to triple treatment... But its one day at a time. I can't sleep.. I cry.... Its 4 30 am now. Reading yours and Jamie's posts has made me realise that we are in a good position compared to yourselves. We have done all the practical stuff ie wills /bills etc...... 

Hi JLT welcome to the group, but sorry you find yourself here. Being told you have cancer is very scary, and such a shock when you are told you are incurable. 

Your lung nurses will be able to help you with breathing exercises, if you give them a ring, they will be able to help you with this. 

I also have incurable lung cancer. There is a group here on the online community which you may want to join, where there has been a lot of discussion recently about how we cope with a terminal diagnosis. I'll pop a link below to the group, if you want to come and join, I know you will be made very welcome. 

living-with-incurable-cancer-forum

Hi Ceri b.      It is truly heartbreaking when you have to watch the person you love go through something you have no control over.. to see the once strong person sit hunched over after loosing all their muscle control. 

Please take my advice... Do all the things you and your husband want to do, damn the cost, make the memories... 

For you... Seek medical help.. i have suffered from severe mental health issues for many years and found that during this, I wasn't sleeping and that makes for a viscous circle... Exhaustion, crying, irritability, resentment, anger... All of which are normal reactions to this horrendous cancer. I didn't want addictive sleeping pills so I was prescribed amitriptyline, which is an antidepressant (works in conjunction with other antidepressant you may be on)... They helped me to get some kind of relief on the bad days... Also, if your not on them already, proplanalol... Very good for anxiety..

Feel free to contact me if you need someone to talk too, sometimes it's easier to talk to a stranger.

My hear is with you and your husband at this time and beyond XXX 

Becky

Hi Jamie.

You sound very much like my husband, he too was riddled with Tumours throughout his body.  As I say, he was diagnosed back in November after having a pain in his chest and a bit if a cough.... No ther symptoms prior to that!!!

He started drastically going down hill about 2 months ago and that was mainly his breathing as he has developed pneumonitis and fluid on his lungs, (they removed 1.7ltrs from one side) ...

We were offered hospice care nearer the end but we opted for him to come home, where he could have all the care of the hospice, just In A familiar setting... Our thought were, as nice and comfy the hospice could be, there was nothing better for both him, myself and our 2 children than to spend time at home. We were given huge support from the hospice, hospital and community nurses.... And I was holding his hand when he peacefully and painlessly passed.

Please make use of their councillors... Especially your wife and mother... As it is, as I am finding, so very, very hard when the time comes.. no matter how prepared we all think we are for what is to come.

I don't know if we're able to give out our email addresses or phone numbers on here, but I am here for you and your family when ever you need, with whatever questions you may have...

Live to you and your family... Hold them close and ENJOY your time left with them.. I can't stress that enough... Go and make memories.... Xxxx 

Becky xxx

Hi Beakermouse, I am so sorry to hear that your husband has sadly passed away. I hope you have some support at home at this difficult time.

We do have a support group here in the online community that you may find very helpful. It is for people that have lost their partner or spouse to this terrible disease. I will put a link below for you.

bereaved-spouses-and-partners-forum

I noticed that you mentioned sharing your email address. Although you cannot do that on a public thread such as this one, you can add people as friends, and then you can start a private message with them. I will also add a link explaining how you can do that.

friends-and-private-messages

Remember as well that the Macmillan support line is available 7 days a week from 8am until 8pm on 0808 808 00 00 if you need to chat to someone.

Take care x 

Dear Becky, 

I’m sorry to hear your sad news. 
I am currently in the same position as you.

 I’m very very scared at how fast it is all progressing. 
I’m trying to do practical things but feel overwhelmed with sadness. 

Take care of yourself 

M 

Oh beakermouse, my sincere condolences to you and your family xx