I'm a 64yr old woman, I have been receiving treatment for COPD for a couple of years now...then in March I contracted covid. I coughed up a small amount of blood and thought it best to see my GP, he sent me to the hospital straight away, I was given a ct scan.. and horror or horrors they told me they could see a problem in my left lung. I've since had EBUS and been diagnosed with non small cell lung cancer and some spread to local lymph nodes, so no op. My first oncology appointment is tomorrow. To be honest I'm in total shock. I just had to tell someone outside.
sorry you find yourself on here. I was in the Sam position as you at Christmas with the same diagnosis, and yes it is a shock, take some time to process what you have been told and whatever you do don’t Google anything, the information is not up to date and is often misleading. If you need to speak to anyone before you speak to you oncologist please contact Macmillion support line.
My advise is try and think about the questions you want to ask your oncologist and listen to what they are telling you if you can. It can be very difficult to take in what is being said to you, I know it can, you will be given some contact numbers for a specialist nurse so don’t get to upset if you leave the oncologist appointment and you have asked all the question you wanted to or you think of more questions. If this happens ring your specialist nurse they are there to help and support, mine were brilliant right from the start, macmillion have been great and I’ve had great support from others in this chat group.
everyone’s journey is unique, and you will feel better when you have a treatment plan to work with. Good luck with your appointment and update us when you can we are here for each other
I saw my oncologist for the first time..no results were back in time..Ebus results were not conclusive as some of the samples had started to die..So had second Ebus.
Pet scan done..results showed the only spread was to lymph nodes on left side..really near the tumor.
Second oncologist meeting yesterday...all results now back..as before no spread accept to very local lymph nodes..doc says she sees no reason..not to cut out tumour and affected lymph nodes..she will talk to surgeon and start ball rolling...brill news.
Phone call from team today regarding the MDT? Discussing next move in my care...I am stage 3b nsclc..I really don't understand..yesterday..no spread..today I'm told I also have cancer in lymph nodes in RH lung nodes..im gutted..how can diagnosis change so quickly? Oh and Kraz mutation ?
i am so sorry to hear this, it must be so confusing for you. I to have NSCLC it’s spread to lymph nodes so I really do understand what you are going through. I know your next appointment seems a long way off, have the hospital given you the contact details for a spec list nurse, if they have please give them a call and express your concerns to them. Please know you are not alone in this journey, and I am always happy to chat as are many people on this forum.
this diagnosis is not as difficult as it used to be, treatment has come a long way and we can come through treatment and get back to enjoying a normal life. Everyone’s treatment plan is different they tailor it to fit the individual, mine consisted of 4 cycles of chemotherapy and immunotherapy combined I completed this part of my plan at the end of April and I’m now having immunotherapy every 3 weeks for the next 2 years my last ct scan showed there has been improvement and for all of this I feel very lucky.
I know you feel sad at the moment but please believe me things will get better, in the mean time please feel free to have a rant to me and try and have some fun over the extended bank holiday
It was when I rang my specialist nurse on Wednesday that I was told about there being spread to my rh side lymph nodes.
I was very confused to say the least that my oncologist was looking at results that showed no spread ..but my specialist nurse was looking at different results than my oncologist had discussed with me 2 days earlier.
i hope things are a little less confusing for you now, I hope they have clearly informed you of your diagnosis, and if there has been spread.
I am always happy to lend an ear, enough kind people on this forum have been there for me when I needed someone,
if you have any questions at all please feel feel to contact me, I happy to explore anything with you, as I said cancer is different for everyone even if 2 people have the same diagnosis.
in the mean time do something to make you smile take care
