Hi, my husband has very recently been diagnosed with lung cancer, following a scan which he had when he attended the emergency dept with a fractured rib!
The diagnosis was completely out of the blue. In the space of 5 weeks we’ve gone from being a happily retired couple, to a living hell. We’ve been told he has malignancies in both lungs, one of which appears to be the primary, liver mets, and this week have been told it’s spread to the bone and the latest, 2 lesions in the brain.
We’ve had very little support from the hospital, which we worked at ourselves for over 40 years. We, haven’t yet seen an Oncologist, and no treatment has been started. My husband is understandably very frightened, but he’s so angry at the way he’s been treated by the hospital. The consultant we saw last week, who’s been treating him for many years for a different lung condition, sat in front of us and I quote said “ the latest scan shows 2 lesions in the brain, you can’t drive anymore”. Bang, she might as well have pulled a trigger, it was the thought of lots more motorbike riding to do, that was keeping him going.
I’m trying to stay strong to support him, but I alternate between crying my eyes out, and wanting to strangle someone.
Hi Jooli, welcome to the group, but I am so sorry to hear about your husband. You are right, it is a living hell when you hear such news about a loved one.
I am so sorry that you feel that you have been left without any real information as to what will happen next. I am hearing this a lot from people who, like your husband are being diagnosed in A&E but are then waiting to see the oncologist with no idea when this will happen.
There are 2 things I would do at this point. Firstly I would phone your GP and ask if there has been a referral under the 2 week pathway, which is what your husband needs now. Secondly I would give the Macmillan support line a call. They will be able to advise you, but also offer a much needed support that you need right now. Just being able to talk to someone over the phone, I think will really help you at the moment. It’s a free call number and they are open 7 days a week from 8am until 8pm on 0808 808 00 00.
let us know how your husband gets on x
