Was not sure what to say so thought I would say it all!
Have suffered with a bad back for years and in April 2021 I underwent radiofrequency treatment that frazzles the end of nerves in your back and so numbs the pain before the nerve endings grow back. Anyway, a few days after life was bliss, almost pain free then I started to get a pain in my legs which got increasingly worse. A telephone call later I was booked in for an urgent MRI scan which shocked everyone. I had cancer deposits in my spine and pelvic bone and my L5 bone which sits on top of this had collapsed.
I was told when cancer was found in the bone like this it had most probably spread from elsewhere in the body and a CT scan in confirmed i had primary cancer i my lung. What a rollercoaster!! I had radiotherapy straight away (June 2021), and started on a targeted therapy drug Osimertinib, at the end of August 2021, as my cancer was found to have a certain mutation and this therapy had had very good results. I had a few complications like diabetes from the steroids, a blood clot and later on cellulitis so spent some time in hospital.
Recent MRI scan showed some new cancer deposits in my spine. This means a change to chemotherapy, Permextred and carboplatin, to start in 3-4 weeks.
On top of this a brain MRI has revealed a spot which they think is cancer. It was not there in my last brain scan since diagnosis. They will discuss and if it is cancer then they will do radiotherapy on my brain before they commence chemotherapy. They say I will have 4-6 cycles, every 3 weeks followed by a maintenance dose of Permextred, presumably ever 3 weeks still.
So it is just timing now really, once we know if my brain spot is cancer.
Thanks for letting me join and thanks for reading xx
Hi scraapi welcome to the group, but sorry you find yourself here. What a rubbish time you have had! It is such a shock when you are told you have cancer, but when you are thrown in at the deep end like you were, you don’t have time to digest what is happening.
So now you are playing the waiting game again! I hope you do not have too long to wait so your treatment can continue.
I am so sorry you are going through this. If you feel you need someone to talk to please do call the Macmillan support line on 0808 808 00 00. They are available 7 days a week from 8am until 8pm.
There is usually someone here in the group to chat to as well. If there is anything I can do to help you find your way around the site just ask.
Take care x
Hi Daisy chain, thank you for your message.
I wanted to say to you,, just from my experience, that I lived a lot in 'limbo land' where you never really knew where you were because you were always waiting for some result or another, and this was dependent on that that hadn't even been scanned yet! So, if you have to live there too for a while, then don't worry, things make sense in the end just not during 
. SOMETIMES. I Wish you really well on your journey xxx
