Extensive SCLC my mum recently diagnosed

It's a horrible time. My hubby has been diagnosed stage 4... And our daughter is the same age as you.... My heart breaks seeing her so upset.... Sending love

Ah thank you x hugs to your daughter. I’m so sorry to hear about your husband x 

My Mum also has Extensive SCLC, she got Chemo and it responded really well.  We were given 6 weeks without Chemo, that was in July 21. She had 6 rounds of Chemo and Radiotherapy.  SCLC responds really well to treatment.  My Mum is 77 and was working up to diagnosis. She has tumours in Lung, Lymph, spine and Liver.  The lymph are now clear and one in her lung as gone, leaving just one, the spine is healing.  The liver is posing a problem but they have said they will give her more Chemo in May, hopefully.  Other than that she is well for now.  The worry is overpowering at times especially when Covid was really has they can't afford to cath anything at all.  All my love to you and your Mum xx

Hi Toppy thank you for that information …. That’s really helped and I have my fingers crossed when my mum meets her consultant on Thursday to discuss treatment she gets what your Mum got to have and gets the same good results. My mums primary cancer is her lungs which we got told 3 weeks ago, the week after we got told it’s in the kidneys / liver / spleen / uterus / spine / blood and bones. The week after her right arm stopped working so we took her back to a&e , they did a brain scan and confirmed it’s in her brain. So at the moment it’s not looking to great as it’s already very extensive …. But I’m trying to remain positive just like my amazing mum is and focusing on any treatment they can give her to prolong things. X the underlying fear and worry though is how quick it’s spread …. And how long we have with her. Truly is such a horrific disease and my heart goes out to everyone on here suffering with it or with family or friends that they are supporting through it x 

i kept googling to try and understand it all but felt that was just freaking me out but have found real life stories and factual information on treatments on this forum are really helping. I’ve told my dad to ask on Thursday about imunetherapy with the chemo as that seems to be quite a good treatment for some positive results x 

Like you I googled and googled the death out of Google, Fingers crossed all is more positive for you both, If you need to ask any questions just shout.

Love to you both xx

Thank you so much it’s appreciated x she’s got an appointment with consultant tomorrow regarding treatment so fingers crossed  

Great, Keep me posted xx

Will do thank you for being so supportive x 

Hi Toppy

So mums appointed was basically confirming extensive small cell carcinoma lung cancer. They are starting chemo next week. They said its a very aggressive type of cancer but does respond well to treatment. They said without treatment it would be very very quick for my mum, with treatment we are looking at a year My mum is feeling positive though that they are offering treatment so that's all I can hope for. I feel so blah, I cant explain it. I'm so glad they can treat her but the back of my mind I'm selfishly thinking about myself and how she might not be here this time next year. Anyways .... kick myself up the bum and pull up my big girl pants, not about me, its about mum and shes prepared to fight as hard as she can ..... hopefully chemo is successful and she gets a bit of energy and life back. Bucket list is being made as we speak .... she wants to go on a cruise from southampton so shes def not prepared to let it stop her xxxx

Hi HCloke13, Extensive SCLC is so aggressive but I didn't want to frighten you - Terrible News but!!! there is a ray of hope that she will get the year or maybe more.  Like my Mum, she was given weeks without the treatment but we are 9 months in and she is still going strong.  In my profile I have kept a diary of events as it happened, if you want you can have a read.  If she responds well to the Chemo she could get 6 rounds. Need to keep her positive and well fed with good high protein foods. My Mum skin got really itchy from the Chemo but if you look on amazon they have a cream called Udderly, which is kind to their skin - also recommend a lipbalm non-scented - my Mum's lips were in a right mess and obviously they lose their hair - It's about getting prepared for whats about to happen. Mum got a wig but she never liked, so she wore towels that you wold use for coming out the shower, wee wrap arounds - again Amazon/Ebay.  My daughter is a hairdresser and she shaved her hair when it was failing out as it can hurt their scalp - something to do with the hair foliciles.

I found this out from lots of comments on here and it has been a godsend.

You are not being selfish, we don't have much time left with them but grab every moment, memory you can and treasure it with all your heart.xx

If you need anything even just to rant, feel free. We are all in the boat xx

All my Love Terri xxx