Hi. After 4 months of tests and been told one week my husband has cancer and the next no it isn't then it is but early doors to another week of well not sure to nope it was an infection but we will repeat the PET scan to be sure...this followed with urgent biopsy then Tuesday we were told sadly it is lung cancer and the disease is progressing fast and when I asked is it still stage 1 the doctor shook his head and said sadly no. They also think the severe sciatica my husband John is suffering could be related. When he had his initial CT scan they found something on his lower spine but it wasn't mentioned again.
We've been told he will receive an MRI ASAP regarding the sciatica and that on Tuesday next week rest of the samples will be back and a full diagnosis and treatment plan should be ready.
After losing my dad at 76 to gall bladder cancer 4 months after been told it won't effect him I don't mind admitting I'm scared. It's all the nit knowing. The hospital were fantastic with dad and I know John will be in good hands but has anyone else taken so long to get a full diagnosis x
Hi Smithies, welcome to the group, but sorry you find yourself here. What a terrible time you are having, so sorry to hear about the loss of your father, and now the diagnoses of your husband as well. That is a lot for anyone. It is hard to say why there was so much confusion around your husbands diagnoses. My experience was completely different to your husbands, and am sorry to hear that your husbands diagnoses has been a real rollercoaster journey for you both.
It is hard for you as you have already lost your father to this awful disease, but please remember that everyone's cancer journey is unique to them, no 2 people are the same. I know how anxious you will be waiting for the results next week, this is a very difficult time with the fear of the unknown ahead. I hope it goes well, and your husband can start with his treatment plan.
The lung group does have many of us here who are going through treatment ourselves, so once you know what the treatment is we will be able to share our own experience with you. There are also other support groups in the community, that you can join and connect with people in a similar situation to yourself.
You can also call the Macmillan support helpline for support 7 days a week from 8am until 8pm on 0808 808 00 00
Take care x
