Hello, diagnosed today ❤︎

Hi Kate,

I'm so sorry for your diagnosis, its hard for the news to sink, I was diagnosed on the 4th of this month with a brain tumour. im still finding it hard i wont lie, the amount of support and advice they offer here at Macmillan is second to non. Please don't do it alone, except advice and friendship, as they say together we will crack it. I haven't been able to sleep since i was put on steroids so ive been able to read a lot of community advice and posts. there are a lot of people in our position, have a read of them, they have helped.

Virtual hugs

Gary X

Hi KateO welcome to the group, but sorry you find yourself here. Things always seem much worse in the middle of the night when you are all alone and cant sleep. 

You can speak to your GP for help in sleeping. The early days are always the worse, and you will probably be in a bit of shock with the news. I know I kept thinking that it wasn't happening to me, and this was somebody else's story. Once you get a treatment plan, reality soon sets in, and you start a new normal. xx 

Hi  So sorry to hear about your diagnoses. Steroids are awful for keeping you awake. I hope they are helping with symptoms though xx 

Thank you everyone, today has been an okish day. I am making plans (I am an organised freak!) I have listed all the practical things I need to do, even ticked some off and arranged from urgent to least, seen family, hugged, cried and laughed too.

My appointment is on 18th to discuss my options, that's the hardest part, I was told its very concerning, and it's travelling to various other places but I don't have a plan yet or even if there is a plan. 

I am allowing myself a wallow time until Sunday and then I must be more positive next week

Hi Chelle,

Thank you for asking, yes I was completely paralysed down my right side, I've 80% mobility back thanks to the steroids. I've surgery this Tuesday, so we will know what I'm up against. Then the fun starts. Xx

Gary.

That is great news Gary, makes the sleepless nights worth while

The very best of luck for your surgery, I will look out for you on the site, see how you are getting on xx