My husband has been diagnosed with stage 4 lung cancer with bone and brain metastatis.. Just starting this journey with chemo next month. I don't know what to expect. If anyone can let me know with any advice oe expectations.
Hello Adyadrcir, firstly, sorry you find yourself in this group, not one we chose to be part of.
My mum was diagnosed last Dec with extensive SCLC, with mets to bones, lymph node, adrenal glands and liver and she started chemo the following month, alongside immunotherapy. Mum did really well, chemo was hard going at times, more so when she was given injections for 5 days to help fight infection. We had up and down days, which is expected, but I told mum to rest when needed, and this helped. She lost her hair, but it started to grow back after her 4 cycles of chemo.
Immunotherapy was a breeze for her, no issues and she felt so well. Unfortunately after 10 months, this stopped working and progression in areas, and now brain mets too. Back on chemo, one she had previously and a different one, awaiting to see if this is working with pet scan, but issues with high potassium, so chemo has stopped last week and awaiting blood results.
It's very scary when first diagnosed for all, but mum soon got into a routine with it all. Chemo was every 3 weeks for 4 cycles, and immunotherapy once a month until it stopped working or 2 years.
Every persons road is different, some tolerate chemo better than others too. We take one day at a time.
It has been hard to watch my parents go through this, very emotional for us all. I think it is important to talk, it was the elephant in the room for a very long time, and still is, but I coax my parents to talk and i'm guided by them.
Do you know what type of lung cancer your husband has, or what chemo he will be having? Have his team discussed radiotherapy? We've only discussed radiotherapy 10 months into this with mum's oncologist.
The above is just an insight into our road so far with lung cancer, and please remember your husbands may be different. Don't be afraid to ask questions if your husband is ok for you to do so, my mu
only wants to know what she needs to, so I ask more in depth and speak to her nurse as mum has given me permission to do so. That way I get facts, not mum's version bless her.
I hope all goes well for your husband.
Sending hugs xx
