Lung cancer and hello everyone

Hi  altho I have a different cancer to you,i wanted to ' bump'your post up ,in the hopes someone from this group will reply to you. Like you, I also take thyroxine as my meds affect levels n low thyroxine also runs in my family. What a pain it is, feeling tired most of the time!

Sue

Hello mama jools

Thankyou for sharing your story so sorry to hear what you are going through, on top of loosing your sister.

 I hope your treatment goes well and I’m wishing you all the very best, keep fighting.

regards

tara

Hello, sorry to hear your story but it really does sound like your treatment is positive. I havent heard of that treatment so it is interesting to hear.  I have always taken thyroxine, not because of the cancer.  It can take ages to reach your optimum level, fairly sure (when I was first diagnosed in the 1990s) they increase it after blood tests every 3 months. It does really help although I generally still am a cold person, you will find that part will get better.  re sleep, I find putting lavender oil on my feet and temples really helps.  wear bed socks too.  Also, I love my TENS machine, you should be able to try one via NHS physio (used to be able to) and then if you like it, can buy at a good rate.  I have had mine for a very long time.  take care x

Hello Mama Jools,

I have a virtually identical diagnosis and treatment, and also suffered badly from shoulder pain and extreme fatigue (although it might not be cancer related, as I also have some injuries). Since I had to discontinue ibuprofen and paracetamol didn’t help, I was quite desperate, so have started acupuncture. I was told that I shouldn’t expect any improvements until after 4-5 sessions, but miraculously it removed almost all pain after one session, and my energy levels are almost back to normal. It ain’t cheap, but I will continue this, as being “myself” again after 6 months of pain and fatigue is worth it. I have little faith in alternative medicines as a whole, but thought I’d at least mention it as an option to try.

Thankyou for your kindness I really appreciate it 

I’m doing ok at the moment and praying it lasts 

I hope you are ok too 

best wishes 

Hi Tara

thankyou for keeping me upbeat and sorry for delay in responding 

I’m still having treatment and doing ok , I’m feeling positive and continue to fight the fight 

 best r3gards to you too 

Thankyou for your advice and reassurance it really is helpful 

I am considering a TENS machine and will discuss with my physiotherapist  in the next few weeks when I have appointment 

I’m hoping you are ok too ?

Thankyou for getting in touch and I’m so pleased to hear about  your improved quality of life , that is brilliant 

I have been diagnosed with adhesive capsulitis , frozen shoulder , via physiotherapist 

I saw my GP first who arranged this as well as X-ray and concluded it was just rotten luck and not cancer related , so I was pleased about this although the pain is bad although GP prescribed meloxicam which I take as well as paracetamol 

I will consider all options including TENS machine and acupuncture to help with this , I’ve had a frozen shoulder before and ended up with a successful manipulation under anaesthetic 

I hope the improvement continues for you 

we will fight the fight , day by day